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Disparities in Distress Symptoms Among Cancer Inpatients, Outpatients and Relatives Through Introducing and
Tana Dornbrach1, Madeleine Volz1, Thomas Seufferlein2
1Department of Psychosomatic Medicine and Psychotherapy, University Clinic of Ulm, Albert-Einstein-Allee, Germany.
Digital screening tools effectively measure distress in cancer patients and their relatives, with text-based instructions showing superiority. Hands-on experience is key for acceptance, highlighting the need for improved counseling and screening accessibility.
Area of Science:
- Oncology
- Digital Health
- Patient Support
Background:
- Cancer care advancements have improved survival but often neglect patient and family distress.
- Inadequate screening contributes to unmet needs, with digitalization offering potential improvements.
- Digital screening tools can enhance the identification of distress in various cancer patient populations.
Purpose of the Study:
- To compare distress levels among outpatients, inpatients, and their relatives.
- To evaluate the acceptance and usability of digital screening tools for distress assessment.
- To identify factors influencing distress and screening tool preferences.
Main Methods:
- 149 participants (relatives, outpatients, inpatients) were randomized to analogue or digital screening (text or video instructions) using the Distress Thermometer.
- Participants rated their distress and subsequently evaluated the usability and acceptance of digital screening measures.
- Data analysis focused on comparing distress levels across groups and assessing satisfaction with digital tools.
Main Results:
- High average distress levels were observed across all participant groups (inpatients, outpatients, relatives) with no significant differences.
- Inpatients desiring counseling reported different distress profiles compared to those without, who were similar to outpatients and relatives.
- Digital screening, particularly text-based, was highly rated for usability and acceptance, especially after hands-on experience; analogue users were more skeptical.
Conclusions:
- Distress is prevalent across cancer patients (inpatients, outpatients) and their relatives, necessitating close screening for all.
- The desire for counseling emerged as a key variable influencing distress presentation.
- Digital screening methods are supported for cancer patients and relatives, with practical experience crucial for user acceptance and broader implementation.
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