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The Effect of a Mobile Game Developed for Children with Familial Mediterranean Fever on Disease Management and
Gamze Kaş Alay1, Birsen Mutlu2
1Faculty of Health Sciences, Department of Child Health and Diseases Nursing, Kastamonu University, Kastamonu, Türkiye.
Objective:
To determine the effect of training children with familial Mediterranean fever (FMF) using a mobile game (MG) or training booklet (TB) on self-efficacy, symptom management, and quality of life (HRQoL) compared with a control group.
Materials And Methods:
The sample of the randomized controlled experimental study consisted of children with FMF. Children in the experimental groups received training with TB (n = 14) or MG (n = 14). The control group (n = 15) received no intervention and continued their routines. The Pediatric Rating of Chronic Illness Self-Efficacy Scale (PRCISE), and Juvenile Autoinflammatory Disease Multidimensional Assessment Report (JAIMAR) were used to collect data. Data were collected in pre-test, post-test-1, and post-test-2.
Results:
The MG group's PRCISE (P < 0.001, P < 0.001), HRQoL (P = 0.001, P = 0.001), therapeutic compliance (P = 0.002, P = 0.004), increased and the mean pain scores (P = 0.044, P = 0.010), the number of symptoms decreased (P < 0.001, P < 0.001) in both measurements after the intervention. The mean PRCISE score of the TB group increased only in post-test 1 (P = 0.008), and the mean HRQoL total score did not change significantly in either post-test measurement (P > 0.05). The TB group's symptom management indicators were similar at all measurements (P > 0.05). The control group's PRCISE and HRQoL scores and symptom management indicators were similar at the three measurement times (P > 0.05).
Conclusion:
The MG increased illness self-efficacy, symptom management and HRQoL in children with FMF and its effect lasted longer than the TB. It is recommended to use and disseminate technology-based and interactive education methods such as MG in the management of chronic diseases in children.
Insights
A mobile game significantly improved self-efficacy, symptom management, and quality of life for children with familial Mediterranean fever (FMF). This technology-based approach showed lasting benefits compared to a training booklet.
Area of Science:
- Pediatric Rheumatology
- Health Technology
- Chronic Disease Management
Background:
- Familial Mediterranean fever (FMF) is a chronic autoinflammatory condition affecting children.
- Effective self-management strategies are crucial for improving outcomes in pediatric chronic illnesses.
- Traditional educational tools may have limitations in engaging young patients.
Purpose of the Study:
- To compare the effectiveness of a mobile game (MG) versus a training booklet (TB) for educating children with FMF.
- To assess the impact of these interventions on self-efficacy, symptom management, and health-related quality of life (HRQoL).
Main Methods:
- A randomized controlled trial involving children diagnosed with FMF.
- Intervention groups received training via MG or TB; a control group received no intervention.
- Data collected using validated scales (PRCISE, JAIMAR) at pre-test and two post-test intervals.
Main Results:
- The MG group demonstrated significant improvements in self-efficacy, HRQoL, and therapeutic compliance, alongside decreased pain and symptoms.
- The TB group showed a transient increase in self-efficacy but no significant changes in HRQoL or symptom management.
- The control group exhibited no significant changes across all measured parameters.
Conclusions:
- Mobile games offer a superior and more sustained method for enhancing self-efficacy, symptom management, and HRQoL in children with FMF.
- Interactive, technology-based educational interventions like mobile games are recommended for managing chronic pediatric diseases.
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