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Updated: Feb 27, 2026

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
Published on: February 16, 2011
"Our Community is not Appropriately Served": LGBTQ+ Cancer Survivors and Caregivers have Suggestions for Providers
Milena E Insalaco1, Nora Akcasu2,3, Lelaina G Nagle1
1University of Rochester, School of Medicine and Dentistry, Department of Surgery, Division of Supportive Care in Cancer, Rochester, NY 14642, USA.
Background:
LGBTQ+ (lesbian, gay, bisexual, transgender, queer, other sexual or gender minority) people experience unique challenges in cancer care. This study describes LGBTQ+ survivors' and caregivers' experiences interacting with cancer care providers and their recommendations for delivering care with cultural humility.
Methods:
We conducted a secondary analysis of qualitative focus group data to extract community members' suggestions for providers. We conducted 10 focus groups with 52 LGBTQ+ cancer survivors and caregivers. Participants were recruited as survivor/caregiver dyads in which at least one member (the survivor and/or the caregiver) identified as LGBTQ+. Focus groups were analyzed using qualitative thematic analysis. A community advisory board participated in one focus group and was consulted on study design, findings, and dissemination.
Results:
Participants identified several recommendations for healthcare providers to improve cancer care delivery for LGBTQ+ survivors and their caregivers. This included, understanding that many LGBTQ+ patients experience minority stress during their cancer care; creating a welcoming space for LGBTQ+ people in care settings with visual indications of inclusivity; using affirming or unassuming language; not shying away from sexual health discussions; offering additional resources, ideally LGBTQ+-specific resources, to LGBTQ+ survivors and caregivers; and incorporating patient-centered approaches.
Conclusion:
Acting on LGBTQ+ cancer survivors' and caregivers' perspectives and recommendations for providers can help improve cancer care delivery for the LGBTQ+ community. This feedback can be utilized to inform medical trainings and innovative support programs to improve provider-patient communication and care.
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