Related Experiment Video
Updated: Feb 28, 2026

08:01
Virtual Hand with Ambiguous Movement between the Self and Other Origin: Sense of Ownership and 'Other-Produced' Agency
Published on: October 28, 2020
6.1K
Agile Authorship: Exploring Collaborative Dementia Memoirs through Fanfiction Practices
Nicola Simonetti1, Marialaura Grandolfo1
1Durham University/Independent.
Summary
Collaborative dementia memoirs challenge single-author norms by embracing interdependence. This approach, inspired by fanfiction, reframes dementia narratives as dynamic, shared explorations of the condition.
Area of Science:
- Narrative Studies
- Disability Studies
- Psychology
Background:
- Collaborative life writing faces ethical challenges regarding power dynamics and disabled subjects' agency.
- Traditional authorship models may not adequately represent the lived experience of dementia.
Purpose of the Study:
- To examine how collaborative dementia memoirs challenge personalized authorship.
- To propose "agile authorship" as a new model for collaborative memoirs involving individuals with and without dementia.
Main Methods:
- Analysis of collaborative dementia memoirs, specifically "Slow Puncture" and "Somebody I Used to Know".
- Drawing parallels with shared authorship concepts from fanfiction communities.
- Applying concepts of interdependence and shared creation to narrative analysis.
Main Results:
- Collaborative dementia memoirs demonstrate interdependence and shared authorship, moving beyond single-author authority.
- These narratives facilitate mutual understanding and exploration of the dementia experience.
- The concept of "agile authorship" offers a framework for understanding these dynamic collaborations.
Conclusions:
- Collaborative dementia memoirs can effectively challenge traditional authorship by emphasizing interdependence.
- Shared authorship models, inspired by fanfiction, provide a valuable alternative for representing complex experiences like dementia.
- "Agile authorship" offers a novel conceptual tool for analyzing collaborative life writing.
Related Concept Videos
Autobiographical Memory
6.9K
Autobiographical memory is a unique type of episodic memory that involves recollecting personal life experiences. It allows individuals to remember significant events from their past, creating a narrative of their lives. One interesting phenomenon related to autobiographical memory is the reminiscence bump. This effect refers to the tendency of adults to recall more events from their second and third decades of life — typically between ages 10 to 30 — than from other periods. This...
6.9K
Dementia
609
Dementia is a collective term for cognitive disorders primarily affecting memory, thinking, and reasoning. It is not a specific disease but a syndrome, with Alzheimer's disease being the most common cause, accounting for approximately 60-80% of cases. Other types include vascular dementia, Lewy body dementia, and frontotemporal dementia. Dementia affects millions worldwide, particularly older adults, though it is not a normal part of aging.
The progression of dementia is generally gradual....
The progression of dementia is generally gradual....
609
Life Histories
23.0K
Overview
23.0K
Altruism
47.9K
Altruistic behaviors are “unselfish” behaviors—those that help another individual at the expense of the individual carrying out the behavior. Despite the negative consequences for the altruistic animal, these behaviors are thought to have evolved for several reasons.
47.9K
Flashbulb Memory
397
A flashbulb memory is a highly vivid and detailed memory, often linked to events of significant emotional impact. These memories stand out in contrast to everyday memories due to their clarity and the precision with which they are recalled. The strong emotions associated with the event act as a catalyst, ensuring that specific details, such as one's location, actions, and even peripheral elements, are etched into memory with remarkable accuracy. For example, many people can vividly recall...
397
Dissociative Identity Disorder
1.2K
Dissociative Identity Disorder (DID), previously termed multiple personality disorder, is a complex psychological condition characterized by the presence of two or more distinct identities or personality states. Each identity exhibits unique patterns of behavior, voice, and mannerisms and may possess separate memories and emotional responses. The alternating control between identities can result in memory gaps and challenges in recalling daily activities, often exacerbating the individual's...
1.2K

