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Developing a Measure to Assess General Knowledge for Coeliac Disease.

Tiffany Lavis1,2, K Ann Horsburgh3,4,5, Jacqueline F Gould1,6

  • 1School of Psychology, Faculty of Health and Medical Sciences, The University of Adelaide, Adelaide, South Australia, Australia.

Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
|March 1, 2026
PubMed
Summary

A new 25-question tool effectively measures coeliac disease knowledge, identifying gaps to improve public awareness and diagnosis. This streamlined scale enhances completion rates and maintains validity for population comparisons.

Keywords:
assessmentautoimmuneceliac diseasecoeliac diseaseglutenmeasurement developmentsymptom awareness

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Area of Science:

  • Medical Research
  • Health Education
  • Diagnostic Tools

Background:

  • Rising incidence of symptomatic, undiagnosed coeliac disease necessitates better knowledge assessment.
  • Understanding coeliac disease is crucial for timely diagnosis and management.

Purpose of the Study:

  • To develop and pilot a tool for measuring general knowledge of coeliac disease.
  • To create a valid and reliable questionnaire for assessing coeliac disease awareness.

Main Methods:

  • A 41-questionnaire was developed from 300 existing questions.
  • Pilot testing involved 359 participants, with analysis of 284 completed responses.
  • Statistical analyses included internal consistency, correlation, and factor analysis to refine the questionnaire.

Main Results:

  • A streamlined 25-question scale was developed by removing low-performing questions.
  • The final questionnaire demonstrated validity and identified three sub-scales: basic knowledge, symptoms, and applied knowledge.
  • Attrition analysis confirmed no significant differences between completers and dropouts.

Conclusions:

  • The 25-question coeliac disease knowledge scale is valid, reliable, and reduces completion time.
  • This tool aids in comparing knowledge across populations and identifying specific educational needs.
  • It can improve public awareness, guide professional training, and enhance food safety related to coeliac disease.