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Health literacy is an individual's or a community's capacity to comprehend, receive, read, and use relevant healthcare information and services. The World Health Organization (WHO, 2018) defines health literacy as the cognitive and social skills that determine the ability of individuals to gain access to, understand, and use information in ways that promote and maintain good health. As a result, the WHO helps individuals manage long-term health concerns, participate in preventative...
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Humans are very diverse and although we share many similarities, we also have many differences. The social groups we belong to help form our identities (Tajfel, 1974). These differences may be difficult for some people to reconcile, which may lead to prejudice toward people who are different. Prejudice is a negative attitude and feeling toward an individual based solely on one’s membership in a particular social group (Allport, 1954; Brown, 2010). Prejudice is common against people who...
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Ethnic Identity within a Larger Culture01:27

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Adolescents from ethnic minority backgrounds face a multifaceted journey in forming their identities, shaped by the intersections of cultural expectations and personal exploration. For these adolescents, identity formation involves not only typical developmental challenges but also navigating the perceptions and attitudes of the majority culture. As they grow, adolescents in ethnic minority groups often become increasingly aware of stereotypes, social biases, and discrimination, all of which...
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Health Information Technology and Healthcare Information System01:30

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The nursing process provides a clinical decision-making framework for patients and families to establish and implement a personalized care plan. Since part of the nurse's duties is to teach patients, the steps of the nursing process are the most effective way to approach instruction. The nursing process and the teaching-learning process are inextricably linked.
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Traditional Level Of Health Care System01:26

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The levels of care describe the services provided in the healthcare system. Accordingly, there are six levels of the traditional healthcare system in the US: preventive, primary, secondary, tertiary, restorative, and continuing healthcare. A nurse must understand how the healthcare industry organizes and provides services within these levels of care.
The preventive healthcare service includes tests for screening. Preventive health care services include identifying and reducing disease risk...
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Knowledge Architecture for Race and Ethnic Group Defining in Learning Health Systems.

Matthew F Hudson1, Virginia M S van Staden1, Alicia M Oostdyk1

  • 1Prisma Health, Cancer Institute Greenville South Carolina USA.

Learning Health Systems
|March 2, 2026
PubMed
Summary
This summary is machine-generated.

Accurate race and ethnicity data are crucial for health equity. This study proposes a model for Learning Health Systems (LHSs) to improve how race data is defined and captured, enhancing health equity assessments.

Keywords:
cultureknowledge architecturelearning health systemqualityraceshared commitments

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Area of Science:

  • Health Services Research
  • Social Determinants of Health
  • Health Equity Studies

Background:

  • Persistent health care access and outcome disparities exist for multiple racial and ethnic groups.
  • Definitions of race and ethnicity are socially constructed and vary across contexts, complicating health outcome measurement.
  • Suboptimal agreement between self-reported and electronic health record race/ethnicity data highlights data capture improvement opportunities.

Purpose of the Study:

  • To provide a rationale, model, and strategy for engaging individuals and families in defining race data within Learning Health Systems (LHSs).
  • To address challenges in reliably measuring health care outcomes across diverse racial and ethnic groups.
  • To enhance the precision of race definitions for improved health equity assessment and intervention development.

Main Methods:

  • Conceptual discussion and proposed model for engaging patients in race data definition.
  • Focus on strategies to improve race data solicitation and capture within LHSs.
  • Emphasis on testing proposed theories and steps for comprehensive and precise race definitions.

Main Results:

  • A proposed model and practical strategy for defining race data through patient engagement.
  • Identification of LHSs as a suitable framework for addressing race data challenges.
  • Rationale for enhanced precision in race definitions to inform equity evaluation.

Conclusions:

  • Engaging individuals and families in defining race data is essential for health equity assessment.
  • Improved precision in race definitions can lead to more effective equity evaluations and interventions in LHSs.
  • Further testing is encouraged to validate the proposed methods for race data definition.