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Facilitating Family-Centred Care at the Paediatric Intensive Care Unit: Implementation of a Co-Created Bedside Family
Lisa-Maria van Klaveren1,2, Barbara Geven3, Rien de Vos1
1Institute for Education and Training, Amsterdam UMC Location University of Amsterdam, Amsterdam, the Netherlands.
Insights
A bedside family board (FB) effectively supports family-centred care (FCC) in paediatric intensive care units (PICUs). This tool personalizes care, improves communication, and empowers families, though consistent integration into workflows is key.
Area of Science:
- Healthcare communication strategies
- Family-centred care models
- Paediatric intensive care unit (PICU) interventions
Background:
- Bedside communication boards are common in healthcare but their role in facilitating family-centred care (FCC) within paediatric intensive care units (PICUs) remains understudied.
- Limited research exists on the specific value of bedside boards in enhancing FCC in the PICU setting.
Purpose of the Study:
- To evaluate the implementation process of a co-created bedside family board (FB).
- To assess the effectivity and effectiveness of the FB in guiding FCC six months post-implementation in the PICU.
Main Methods:
- A hybrid effectiveness-implementation study design (Type 2) was employed.
- Data collection included validated questionnaires, structured observations, self-report surveys, focus groups, and interviews.
Main Results:
- The FB showed high acceptability, appropriateness, and feasibility, though consistent integration into daily workflows requires ongoing attention.
- Effectivity data confirmed the FB reflects child and family needs, with some variability in item use and relevance based on developmental stage.
- Effectiveness findings indicated the FB enhanced family inclusion in care planning and goal setting, promoting FCC by personalizing care, guiding education, and supporting transitions.
Conclusions:
- The bedside family board (FB) is a practical and effective tool for enhancing family-centred care (FCC) in the PICU.
- Sustained use necessitates embedding the FB into standard workflows, shared responsibility among the interprofessional team and families, and tailoring to individual patient and family contexts.
- Successful implementation hinges on co-creation, contextual adaptation, process integration, and ongoing training to foster family empowerment and collaborative care.
Background:
Bedside boards are used in various healthcare settings to support communication but their additional value in facilitating family-centred care (FCC) in the paediatric intensive care unit (PICU) has not been systematically studied.
Aims:
To evaluate the implementation process of a co-created bedside family board (FB) and assess its effectivity and effectiveness to guide FCC six months following its implementation in the PICU.
Study Design:
Hybrid effectiveness-implementation design type 2, using validated questionnaires, structured observations and self-report surveys complemented by two focus groups and an interview.
Results:
Validated questionnaires indicated high acceptability, appropriateness and feasibility of the FB. Qualitative data highlighted the need for ongoing awareness and integration into daily workflows. Effectivity measures showed that the FB accurately reflected child and family needs, although some items of the FB were used inconsistently, and their relevance varied by developmental stage. Effectiveness results demonstrated that the FB facilitated the inclusion of family perspectives in care planning and shared goal setting, thereby promoting FCC. Professionals and families valued the FB for making care more personal, aligning care with the child's preferences and family experiences, guiding family education and supporting care transitions.
Conclusion:
The FB demonstrated to be a practical and effective tool for enriching FCC in the PICU. It standardises the recording and sharing of child and family needs while allowing personalisation. Embedding the FB into standard workflows, sharing responsibility across the interprofessional team including families, and tailoring it to the child's developmental stage, condition and family context are essential for sustained use.
Relevance To Practice:
A FB empowers families, fosters shared understanding of care goals and enriches collaboration in paediatric critical care settings. Successful implementation requires co-creation, contextual tailoring, integration with existing processes and ongoing training to maintain engagement.
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