Facilitating Family-Centred Care at the Paediatric Intensive Care Unit: Implementation of a Co-Created Bedside Family

Lisa-Maria van Klaveren1,2, Barbara Geven3, Rien de Vos1

  • 1Institute for Education and Training, Amsterdam UMC Location University of Amsterdam, Amsterdam, the Netherlands.

PubMed

Insights

A bedside family board (FB) effectively supports family-centred care (FCC) in paediatric intensive care units (PICUs). This tool personalizes care, improves communication, and empowers families, though consistent integration into workflows is key.

Area of Science:

  • Healthcare communication strategies
  • Family-centred care models
  • Paediatric intensive care unit (PICU) interventions

Background:

  • Bedside communication boards are common in healthcare but their role in facilitating family-centred care (FCC) within paediatric intensive care units (PICUs) remains understudied.
  • Limited research exists on the specific value of bedside boards in enhancing FCC in the PICU setting.

Purpose of the Study:

  • To evaluate the implementation process of a co-created bedside family board (FB).
  • To assess the effectivity and effectiveness of the FB in guiding FCC six months post-implementation in the PICU.

Main Methods:

  • A hybrid effectiveness-implementation study design (Type 2) was employed.
  • Data collection included validated questionnaires, structured observations, self-report surveys, focus groups, and interviews.

Main Results:

  • The FB showed high acceptability, appropriateness, and feasibility, though consistent integration into daily workflows requires ongoing attention.
  • Effectivity data confirmed the FB reflects child and family needs, with some variability in item use and relevance based on developmental stage.
  • Effectiveness findings indicated the FB enhanced family inclusion in care planning and goal setting, promoting FCC by personalizing care, guiding education, and supporting transitions.

Conclusions:

  • The bedside family board (FB) is a practical and effective tool for enhancing family-centred care (FCC) in the PICU.
  • Sustained use necessitates embedding the FB into standard workflows, shared responsibility among the interprofessional team and families, and tailoring to individual patient and family contexts.
  • Successful implementation hinges on co-creation, contextual adaptation, process integration, and ongoing training to foster family empowerment and collaborative care.
Abstract

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