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Kinesiophobia in Parents of Children with Haemophilia

Erkan Kaya1, Elif Guler Kazanci2, Taner Dandinoglu1

  • 1Department of Physical Medicine and Rehabilitation, Bursa City Hospital, Bursa, Turkiye.

Journal of the College of Physicians and Surgeons--Pakistan : JCPSP
|March 4, 2026
PubMed

Insights

Parents of children with haemophilia do not show higher kinesiophobia (fear of movement) than parents of healthy children. However, factors like bleeding risk and pain associated with haemophilia may contribute to parental kinesiophobia.

Area of Science:

  • Medical Rehabilitation
  • Pediatric Hematology
  • Psychology

Background:

  • Haemophilia is a genetic bleeding disorder requiring careful management.
  • Kinesiophobia, or fear of movement, can impact individuals and their families.
  • Understanding parental kinesiophobia is crucial for holistic patient care.

Purpose of the Study:

  • To compare kinesiophobia levels in mothers of children with haemophilia versus mothers of healthy children.
  • To identify factors associated with kinesiophobia in mothers of children with haemophilia.

Main Methods:

  • A cross-sectional study involving 30 mothers of children with haemophilia and 30 mothers of healthy children.
  • Utilized the Tampa Scale for Kinesiophobia (TSK), Visual Analogue Scale (VAS) for pain, Short Form-36 (SF-36) for quality of life, and Beck Depression Inventory (BDI).
  • Statistical analysis included Mann-Whitney U test and Spearman's rank correlation coefficient.

Main Results:

  • No significant differences in kinesiophobia (TSK scores) were observed between mothers of children with haemophilia and mothers of healthy children.
  • Demographic factors like age, BMI, and education level did not differ significantly between the groups.
  • The study did not identify specific factors associated with kinesiophobia in this cohort based on the tested variables.

Conclusions:

  • While this study found no difference in kinesiophobia levels between the groups, the underlying risks in haemophilia (bleeding, pain, injury) are theoretically linked to increased parental fear of movement.
  • Healthcare providers should consider and address parental kinesiophobia in the context of haemophilia care.
  • Further research is needed to explore the nuances of parental kinesiophobia and its management strategies.
Abstract

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