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Values of Individuals With Rare Genetic Neurodevelopmental Disorders and Their Family/Caregivers in Healthcare: A

Mirthe J Klein Haneveld1,2, Louise Cox1, Petri J C M Embregts3

  • 1Amsterdam Reproduction & Development, Amsterdam Public Health, Amsterdam UMC, University of Amsterdam, Emma Children's Hospital, Amsterdam, the Netherlands.

Journal of Intellectual Disability Research : JIDR
|March 6, 2026
PubMed
Abstract

Keywords:
clinical practice guidelinesdecision‐makinghealthcareintellectual disabilitiesrare conditionsvalues

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