Addressing the missing framework of paediatric palliative care in Saudi Arabia

Albraa Abulhamail1, Khaled AlGhamdi2

  • 1Complex/Palliative Care Consultant, Paediatrics Department, King Abdulaziz University, Saudi Arabia.

Insights

Most healthcare workers in Saudi Arabia lack comfort and formal training in paediatric palliative care. Establishing dedicated services and integrating education are crucial for improving care for children with life-limiting illnesses.

Area of Science:

  • Palliative Care
  • Pediatrics
  • Healthcare Worker Training

Background:

  • Paediatric palliative care is a vital multidisciplinary specialty.
  • It focuses on improving the quality of life for children with life-limiting illnesses and their families.

Purpose of the Study:

  • To assess the impact of insufficient paediatric palliative care services on healthcare worker comfort levels in Saudi Arabia.

Main Methods:

  • A multi-center cross-sectional study was conducted.
  • Data was collected from 230 healthcare workers using a validated self-administered questionnaire across Saudi Arabia.

Main Results:

  • Only 51.74% of participants felt comfortable caring for paediatric palliative care patients.
  • A mere 9.13% reported receiving formal training in this specialty.
  • A significant disparity exists between the need for and availability of paediatric palliative care.

Conclusions:

  • Formal training in paediatric palliative care is critically lacking among healthcare workers.
  • Integrating paediatric palliative care education into medical and nursing curricula is essential.
  • Establishing dedicated services and expert-led training are vital for enhancing care quality.
Abstract

Related Concept Videos

Continuing Care01:25

Continuing Care

Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
2.0K
Specialized Care Centers and Settings-I01:30

Specialized Care Centers and Settings-I

Specialized care settings or centers are situated in convenient locations within the community and offer care to a specific group or population. They consist of daycare facilities, mental health facilities, rural health facilities, educational institutions, industries, shelters for the homeless, and rehabilitation facilities.
Daycare centers
They provide several functions. Some facilities care for healthy newborns and children whose parents work, while others are medically focused and care for...
1.5K
Primary Healthcare Services01:30

Primary Healthcare Services

Primary care promotes wellness and prevents disease. This care includes health promotion, education, protection (such as immunizations), early disease screening, and environmental considerations. Settings providing this type of healthcare include physician offices, public health clinics, school nursing, and community health nursing.
In 1978, international leaders convened in Alma-Ata, Kazakhstan, for what would be a pivotal event in global health. The Alma-Ata Declaration was the first to call...
2.6K
Specialized Care Centers and Settings-II01:30

Specialized Care Centers and Settings-II

Rural Health Centers
Rural health centers are specialized care facilities in remote locations with very few medical personnel. The primary care providers who run the centers are mostly Registered Nurse Practitioners. Here, emergency treatment is provided to critically ill or injured patients before they are transferred to the closest hospital. Fortunately, due to advancement in technology, many rural healthcare facilities and professionals have easy access to diagnostic and treatment...
1.3K
Pharmacokinetics in Pediatric Patients: Drug Metabolism01:24

Pharmacokinetics in Pediatric Patients: Drug Metabolism

In pediatric care, understanding the nuances of hepatic drug metabolism is crucial, as it significantly differs from that of adults. This divergence is primarily due to the developmental stage of drug-metabolizing enzymes, which affects how medications are processed in the body. In neonates, for instance, the activity of Phase I enzymes—critical for the initial breakdown of drugs—is markedly reduced, functioning at just 20–40% of the levels seen in adults. This reduction poses...
304
Patient-centered Care01:13

Patient-centered Care

Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
3.2K