Quality of life in children with defecation disorders compared with healthy
Yang Yang1, Ting An1, Liwei Feng1
1Department of Pediatric Surgery, West China Hospital/ West China School of Nursing, Sichuan University, Chengdu, China.
Insights
Children with defecation disorders experience significantly poorer quality of life across physical, emotional, social, and cognitive domains compared to healthy peers. Caregivers also report frequent negative emotions in these children.
Area of Science:
- Pediatric Health
- Quality of Life Research
- Gastroenterology
Background:
- Defecation disorders in children can impact overall well-being.
- Limited research exists on the quality of life (QoL) for children with these conditions.
Purpose of the Study:
- To compare the quality of life (QoL) of children with defecation disorders against a healthy control group.
- To identify specific QoL domains affected by defecation disorders in children.
Main Methods:
- A cross-sectional study design was employed.
- Children with defecation disorders and age/sex-matched healthy controls were recruited.
- The Chinese version of the Pediatric Quality of Life Inventory™ 4.0 was used to assess QoL.
Main Results:
- Children with defecation disorders exhibited significantly lower QoL scores in physical, emotional, social, and cognitive functions (P < 0.001).
- Nearly half of caregivers reported negative emotions in their children, including irritability, depression, and fatigue.
Conclusions:
- Children with defecation disorders have a substantially reduced quality of life compared to healthy children.
- Healthcare providers should consider the psychological, emotional, and social integration aspects when managing children with defecation disorders.
Abstract:
To investigate the quality of life of children with defecation disorders by comparing with a healthy control group. A cross-sectional study enrolled children with defecation disorders from a tertiary hospital (June-July 2024) and age- and sex-frequency matched healthy controls from three communities (August 2024). Participants were recruited according to the inclusion and exclusion criteria. Quality of life was assessed using the Chinese version of the Pediatric Quality of Life Inventory™ 4.0, encompassing physical, emotional, social, and cognitive dimensions (scored 0-100). Caregiver-reported negative emotions in children with defecation disorders were also documented. Children with defecation disorders had significantly lower quality of life scores in physical health, emotional function, social function, and cognitive function (P < 0.001). Nearly half of caregivers reported negative emotions, with irritability, depression, and fatigue being most common. Children with defecation disorders have significantly lower quality of life than healthy children. Healthcare providers should address the comprehensive quality of life including psychological, emotional, and social integration aspects.
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