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Related Concept Videos

Ethics in Research01:56

Ethics in Research

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Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
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Sometimes we want to see how people change over time, as in studies of human development and lifespan. When we test the same group of individuals repeatedly over an extended period of time, we are conducting longitudinal research. Longitudinal research is a research design in which data-gathering is administered repeatedly over an extended period of time. For example, we may survey a group of individuals about their dietary habits at age 20, retest them a decade later at age 30, and then again...
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The most basic experimental design involves two groups: the experimental group and the control group. The two groups are designed to be the same except for one difference— experimental manipulation. The experimental group gets the experimental manipulation—that is, the treatment or variable being tested—and the control group does not. Since experimental manipulation is the only difference between the experimental and control groups, we can be sure that any differences between...
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Appropriate sampling methods ensure that samples are drawn without bias and accurately represent the population. Because measuring the entire population in a study is not practical, researchers use samples to represent the population of interest.
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Archival Research01:40

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Some researchers gain access to large amounts of data without interacting with a single research participant. Instead, they use existing records to answer various research questions. This type of research approach is known as archival research. Archival research relies on looking at past records or data sets to look for interesting patterns or relationships. For example, a researcher might access the academic records of all individuals who enrolled in college within the past ten years and...
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Related Experiment Video

Updated: Mar 12, 2026

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
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Guide to developing research recruitment strategies with the experts.

Gita Ramdharry1,2, Mie Rizig3, Babikir Osman4

  • 1Department of Neuromuscular Disorders, UCL Queen Square Institute of Neurology, London, UK.

BMJ Neurology Open
|March 11, 2026
PubMed
Summary

This study co-produced a research recruitment strategy with UK patients from racially minoritized backgrounds living with neurological diseases. Key strategies address access, information, trust, and cultural sensitivity to improve ethnic diversity in research.

Keywords:
NEUROMUSCULAR

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Area of Science:

  • Neurology
  • Public Health
  • Health Services Research

Background:

  • Partnership with individuals from racially minoritized communities in the UK living with neurological diseases.
  • Incorporation of lived experiences of neurological conditions and community insights to inform research recruitment.

Purpose of the Study:

  • To co-produce a research recruitment strategy tailored for individuals from racially minoritized backgrounds.
  • To enhance engagement and ethnic diversity in neurological disease research.

Main Methods:

  • Three workshops involving six patient partners from racially minoritized backgrounds.
  • Exploration of research experiences, barriers, and community concerns.

Main Results:

  • Identified key issues: knowledge, communication, trust, shame, and personal choice.
  • Developed eight strategy areas including access to clinics and information, patient involvement groups, incentives, family involvement, communication of outcomes, and cultural sensitivity.

Conclusions:

  • A co-produced strategy was formulated to boost engagement and ethnic diversity in neurological research.
  • Recommendations for adapting the strategy to other contexts in partnership with patients.