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Updated: Mar 12, 2026
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A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
Published on: January 12, 2018
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Guide to developing research recruitment strategies with the experts
Gita Ramdharry1,2, Mie Rizig3, Babikir Osman4
1Department of Neuromuscular Disorders, UCL Queen Square Institute of Neurology, London, UK.
BMJ Neurology Open
|March 11, 2026
Summary
This study co-produced a research recruitment strategy with UK patients from racially minoritized backgrounds living with neurological diseases. Key strategies address access, information, trust, and cultural sensitivity to improve ethnic diversity in research.
Area of Science:
- Neurology
- Public Health
- Health Services Research
Background:
- Partnership with individuals from racially minoritized communities in the UK living with neurological diseases.
- Incorporation of lived experiences of neurological conditions and community insights to inform research recruitment.
Purpose of the Study:
- To co-produce a research recruitment strategy tailored for individuals from racially minoritized backgrounds.
- To enhance engagement and ethnic diversity in neurological disease research.
Main Methods:
- Three workshops involving six patient partners from racially minoritized backgrounds.
- Exploration of research experiences, barriers, and community concerns.
Main Results:
- Identified key issues: knowledge, communication, trust, shame, and personal choice.
- Developed eight strategy areas including access to clinics and information, patient involvement groups, incentives, family involvement, communication of outcomes, and cultural sensitivity.
Conclusions:
- A co-produced strategy was formulated to boost engagement and ethnic diversity in neurological research.
- Recommendations for adapting the strategy to other contexts in partnership with patients.
Keywords:
NEUROMUSCULAR
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