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Published on: September 30, 2020
[Clinical complexity and need for palliative care in non-oncological patients with special health care needs]
Romina Espinoza Núñez1, Carlos Valdebenito Parra1, Antonio Huerta-Armijo1
1Sociedad Chilena de Pediatría, Santiago, Chile.
Insights
Clinical complexity in Children and Youth with Special Health Care Needs (CYSHCN) strongly correlates with the need for pediatric palliative care (PPC). High-complexity CYSHCN patients particularly require intensified PPC services.
Area of Science:
- Pediatrics
- Palliative Care
- Healthcare Management
Background:
- Categorizing the complexity of Children and Youth with Special Health Care Needs (CYSHCN) can inform pediatric palliative care (PPC) needs.
- Previous studies have not evaluated the association between clinical complexity and PPC requirements in CYSHCN.
Purpose of the Study:
- To evaluate the association between clinical complexity and the requirement for PPC in CYSHCN.
- To determine if complexity levels predict the need for and intensity of PPC.
Main Methods:
- An observational, cross-sectional study was conducted with 70 CYSHCN patients.
- Patients were classified by complexity (low, medium, high) and assessed for PPC needs using the Paediatric Palliative Screening Scale (PaPaS Scale).
Main Results:
- A strong positive correlation (Pearson r = 0.8225) was found between clinical complexity and the need for PPC.
- 65.7% of patients were high-complexity, and 65.7% required PPC; all high-complexity patients needed PPC.
- No patients required PPC in the low-complexity group.
Conclusions:
- A significant correlation exists between clinical complexity and the need for PPC in CYSHCN.
- High-complexity CYSHCN patients are more likely to require intensified palliative care.
- Complexity assessment is crucial for guiding PPC provision in CYSHCN.
Abstract:
Categorizing the complexity of Children and Youth with Special Health Care Needs (CYSHCN) could be useful in guiding their need for pediatric palliative care (PPC). However, there are no studies that have evaluated this association.
Objective:
To evaluate the association between clinical complexity and the requirement for PPC in CYSHCN.
Patients And Method:
Observational, cross-sectional, and descriptive study. Data were collected between 2022 and 2023 at the CYSHCN Home Hospitalization Unit of the Hospital Clínico San Borja Arriarán. Non-probabilistic convenience sampling. Patients were categorized according to complexity guidelines for CYSHCN as low, medium, or high; and the "Paediatric Palliative Screening Scale" (PaPaS Scale) was applied to evaluate the need for PPC, categorizing them into: no need for PPC; explain the objectives of PPC to caregivers; prepare the start of PPC, and start the intervention as the central axis of management.
Results:
70 CYSHCN patients were studied, 6 (8.57%) correspond to low complexity, 18 (25.7%) to medium, and 46 (65.7%) to high complexity. Of those studied, 24 (34.2%) did not require intervention, and 46 (65.7%) required PPC with varying degrees of intensity. The association between clinical complexity and the need for PPC had a Pearson correlation coefficient of 0.8225.
Conclusion:
There is a strong correlation between clinical complexity and the need for PPC in CSHCN in follow-up by the CYSHCN Home Hospitalization Unit. All patients in this study who require intensified palliative care are high-complexity CYSHCN.
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