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Related Experiment Video

Updated: Mar 19, 2026

Home-Based Prescribed Pulmonary Exercise in Patients with Stable Chronic Obstructive Pulmonary Disease

Home-Based Prescribed Pulmonary Exercise in Patients with Stable Chronic Obstructive Pulmonary Disease

Published on: August 24, 2019

Patient Work in Long-Term Conditions.

Silje Bjørnsen Haavaag¹, Aud Uhlen Obstfelder², Ragnhild Hellesø¹

¹Department of Public Health and Interdisciplinary Health Sciences, Institute of Health and Society, University of Oslo, Oslo, Norway.

Qualitative Health Research

|March 17, 2026

Summary

This summary is machine-generated.

People with long-term conditions actively manage their health by initiating care and monitoring symptoms. Recognizing this patient work is crucial for understanding and improving chronic disease management.

Keywords:

care trajectory long-term conditions patient work

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Last Updated: Mar 19, 2026

Home-Based Prescribed Pulmonary Exercise in Patients with Stable Chronic Obstructive Pulmonary Disease

Home-Based Prescribed Pulmonary Exercise in Patients with Stable Chronic Obstructive Pulmonary Disease

Published on: August 24, 2019

Using Continuous Data Tracking Technology to Study Exercise Adherence in Pulmonary Rehabilitation

Using Continuous Data Tracking Technology to Study Exercise Adherence in Pulmonary Rehabilitation

Published on: November 8, 2013

Area of Science:

Health Services Research
Patient Experience
Chronic Disease Management

Background:

Long-term conditions cause significant global morbidity and mortality.
Fragmented care is common for individuals with chronic diseases.
Patient contributions to care processes are often overlooked in integrated care models.

Purpose of the Study:

To explore the work undertaken by individuals with long-term conditions.
To understand the significance of patient work in care trajectories.
To analyze how patients navigate their healthcare journeys.

Main Methods:

Semi-structured interviews with patients managing chronic obstructive pulmonary disease and musculoskeletal disorders.
Study conducted with home-dwelling participants in Norway.
Reflexive thematic analysis guided by Strauss et al.'s theory of work.

Main Results:

Patients proactively initiate care and ask questions.
Individuals continuously monitor their bodies for changes.
Patients engage in deliberative interactions with healthcare providers.
Patient actions constitute significant, often invisible, work in managing chronic conditions.

Conclusions:

People with long-term conditions perform comprehensive work that shapes their care trajectories.
Acknowledging patient work enhances understanding of healthcare utilization.
Integrating patient work into care models can improve management of chronic diseases.