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Life beyond diagnosis: The psychosocial experiences of individuals with a sibling with autism: A qualitative study
Zeynep Kisecik Sengul1, Hava Salik2, Savaş Berk3
1Kirikkale University, Health Sciences Faculty, Nursing Department, Kirikkale, Türkiye.
Aim:
This study aims to explore the psychosocial experiences of siblings of children with autism spectrum disorder (ASD) residing in the Eastern and Southeastern Anatolia regions of Türkiye.
Methods:
A qualitative approach grounded in interpretative phenomenological analysis (IPA) was employed. The sample comprised 27 siblings from these regions. Data were gathered through in-person, semi-structured interviews following a criterion sampling strategy.
Results:
Five primary themes were identified: (1) daily interaction and experiences, (2) future concerns and responsibilities, (3) family dynamics and support, (4) social perceptions and external reactions, and (5) personal developments and values.
Conclusions:
Siblings of children with ASD encounter complex, multifaceted psychosocial challenges. While fostering positive attributes such as resilience and empathy, they simultaneously shoulder emotional burdens and anxiety, necessitating targeted support.
Practical Implications:
Structured psychosocial programs are essential to address the emotional needs and future anxieties of siblings. Interventions enhancing family communication and societal awareness may facilitate better adjustment and promote overall family balance.
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