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Experiences of Discharge Preparedness Among Patients with Chronic Heart Failure and Their Caregivers: A

YongQuan Wang¹, ChunYing Wang², YunFeng Meng¹

¹School of Nursing, Qiqihar Medical University, Qiqihar, Heilongjiang, 161003, People's Republic of China.

Patient Preference and Adherence

|March 25, 2026

Abstract

Objective:

To explore the lived experiences of discharge readiness among older patients with chronic heart failure and their family caregivers during the hospital-to-home transition.

Patients And Methods:

Guided by Husserlian descriptive phenomenology, we conducted in-depth, semi-structured interviews with 16 patient-caregiver dyads purposively sampled from three cardiology departments at a tertiary hospital in Heilongjiang Province, China, between July and September 2025. Data were analyzed using Colaizzi's seven-step method to uncover essential structures of the lived experience.

Results:

Analysis revealed three core themes: (1) Cognitive ambiguity in illness understanding, characterized by reliance on symptom intuition and gaps in knowledge about disease mechanisms; (2) Emotional and relational struggles during psychological adjustment, including fear, role disruption, and efforts to preserve dignity; and (3) Perceived fragmentation of post-discharge support, marked by discontinuous care guidance, caregiver burden, and systemic barriers to healthcare access.

Conclusion:

This study illuminates how older patients with heart failure and their caregivers navigate the transition home amid persistent uncertainty, emotional strain, and fragmented support. Findings underscore the need for transitional care models that provide structured illness education, integrate dyadic psychological support, and establish nurse-coordinated follow-up to enhance self-management and reduce readmission risk.

Keywords:

chronic heart failure discharge preparedness patient and caregiver experiences phenomenological study transitional care

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