Leveraging User Experience Design Expertise in Palliative Care Intervention Science

Area of Science:

• Pediatric Palliative Care
• Humanistic Care Interventions
• User Experience (UX) Design

Background:

• Palliative care for children with serious illnesses needs practical design expertise for effective bedside implementation.
• Real-world design is crucial for creating engaging, feasible, and impactful interventions.

Purpose of the Study:

• To detail the collaborative process of applying user experience (UX) design to an evidence-based humanistic care intervention called photo-narratives.
• To prepare the photo-narrative intervention for implementation in a pediatric hospital setting.

Main Methods:

• A collaborative design process occurred between hospital researchers and graduate UX design student teams.
• The process involved refining the photo-narrative intervention and developing a technology-integrated implementation strategy.
• A seven-step UX design approach was followed, including problem understanding, data collection, design constraints, prototyping, and usability testing.

Main Results:

• The collaboration facilitated the refinement of the photo-narrative intervention.
• A technology-integrated implementation strategy was developed.
• Prototyping and usability testing informed the intervention's design for practical application.

Conclusions:

• Collaboration between researchers and UX design teams is vital for intervention design and prototyping.
• This partnership is essential for the successful implementation of real-world palliative care interventions in pediatric settings.