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Related Experiment Video

Updated: Mar 27, 2026

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
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Research on Preterm Birth Prevention: The Participant Experience.

Gillian A Corbett1,2, Lucy Murphy1, Emma Hokey1

  • 1UCD Perinatal Research Centre, University College Dublin, National Maternity Hospital, Dublin, Ireland.

The Australian & New Zealand Journal of Obstetrics & Gynaecology
|March 26, 2026
PubMed
Summary

Women at high risk for spontaneous preterm birth (sPTB) willingly participated in research, motivated by a desire to help others. Their satisfaction stemmed from perceived better care and continuity, highlighting patient willingness in high-risk pregnancies.

Keywords:
motivationparticipationpatient perspectivepreterm birthresearch

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Area of Science:

  • Obstetrics and Gynecology
  • Perinatal Research
  • Patient-Centered Care

Background:

  • Spontaneous preterm birth (sPTB) research is critical, yet patient perspectives on research participation are underrepresented.
  • Understanding patient experiences is vital for improving recruitment and retention in sPTB studies.

Purpose of the Study:

  • To explore the experiences and motivations of women participating in a spontaneous preterm birth research study.
  • To identify factors contributing to participant satisfaction in high-risk pregnancy research.

Main Methods:

  • A prospective mixed-methods study involving 112 women at high risk for sPTB.
  • Data collection included surveys on participation experience administered 6 weeks postpartum.
  • Analysis employed reflexive thematic analysis to interpret participant responses.

Main Results:

  • Primary motivations included altruism (protecting others) and interest in the study's scientific rationale (microbiome).
  • A significant majority (91.0%) enjoyed participating.
  • Satisfaction drivers included perceived improvements in clinical care, continuity of care, and perceived clinical outcomes.

Conclusions:

  • Women at risk for sPTB are motivated to participate in research by altruistic goals and a desire to improve care.
  • Perceived enhancements in clinical care and continuity significantly contribute to participant satisfaction.
  • Findings underscore the willingness of high-risk pregnant individuals to engage in research and emphasize the need for results dissemination.