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Educating Students About Digital Health Research Ethics: Curricula Review and Expert Interview Study.
Yier Zhu1, Brian McInnis1, Tanya Punater1
1Herbert Wertheim School of Public Health and Human Longevity Science, University of California San Diego, La Jolla, CA, United States.
Digital health ethics training for students combines formal courses and practical experience. However, access to hands-on learning is inconsistent, highlighting a need for improved, structured ethics education in this rapidly growing field.
Area of Science:
- Digital Health
- Bioethics
- Research Ethics
Background:
- Digital health research, encompassing wearables, apps, and sociotechnical systems, presents complex ethical challenges.
- Existing ethics frameworks and institutional review boards partially address these concerns.
- Systematic ethics education for digital health trainees is not well understood, yet critical for responsible innovation.
Purpose of the Study:
- To investigate how college students are educated in digital health ethics.
- To analyze formal curricula and gather expert perspectives on ethics training.
Main Methods:
- Reviewed 132 syllabi from 76 academic programs at 62 universities.
- Conducted semistructured interviews with 6 leading digital health scholars.
- Coded syllabi for content and learning objectives, using affinity diagramming to identify themes.
Main Results:
- All reviewed syllabi contained ethics instructional content, with most specifying learning objectives.
- Identified 7 key themes encompassing formal instruction and practical, tacit knowledge.
- Revealed a gap between theoretical ethics instruction and actual research practices.
Conclusions:
- Digital health ethics education integrates formal coursework and practice-based training for essential skills.
- Current training supports ethical issue identification and risk anticipation but lacks consistent experiential learning.
- Recommendations include expanding early research engagement, fostering communities of practice, and integrating ethical reflection into research activities.
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