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Assessing Willingness to Pay for Genetic Testing Among Adults: A Cross-Sectional Study Using Data from the Omnibus
Angelo Navas1, Lauren Hendy1, Megan Roberts1
1Division of Pharmaceutical Outcomes and Policy, Eshelman School of Pharmacy, University of North Carolina, Chapel Hill, NC 27599, USA.
Insurance type did not significantly impact willingness to pay for population genetic screening (PGS). Trust and family history influenced willingness to pay for these important genetic tests.
Area of Science:
- Genomics
- Health Economics
- Public Health
Background:
- Population genetic screening (PGS) identifies hereditary cancer and cardiovascular disease risks.
- Lack of insurance coverage for PGS is a significant barrier to adoption.
- Medicaid and Medicare beneficiaries may face additional barriers to cost-free screening.
Purpose of the Study:
- To investigate the association between insurance type and willingness to pay (WTP) for PGS.
- To identify factors influencing WTP for genetic testing among US adults.
- To understand the economic barriers to accessing genetic screening services.
Main Methods:
- A cross-sectional online survey of 602 US adults was conducted in January 2023.
- Andersen's model informed variable selection for the study.
- An ordered probit model analyzed the relationship between insurance type and WTP for PGS.
Main Results:
- Over 70% of respondents expressed willingness to pay for genetic testing.
- WTP for PGS was not significantly associated with insurance type (including Medicare and Medicaid).
- Lower trust levels and lack of family cancer history correlated with lower WTP for genetic screening.
Conclusions:
- Willingness to pay for population genetic screening is independent of insurance type.
- A substantial portion of the population remains unwilling to pay for PGS, highlighting value perception variability.
- Further research is needed to understand individual valuation of genomic screening tests.
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