Information Needs of Culturally and Linguistically Diverse Women with Endometriosis in Australia: A Qualitative Study

Culturally and linguistically diverse (CALD) women make up an important population of women with endometriosis in Australia. However, their experiences with the condition, particularly regarding their experiences with information on endometriosis, have not yet been studied. This qualitative descriptive study aimed to explore the information needs and preferences of CALD women living with endometriosis. A qualitative descriptive study, using semi-structured individual interviews with 11 CALD women aged 23-46 from Victoria, Australia, was undertaken. The data were analysed using thematic analysis. The women's information needs focused on disease pathogenesis-including causes, symptoms, and progression-as well as disease management, such as medication and surgery, lifestyle factors, fertility treatment, and mental health support. The women suggested resources should be easy to understand, written in simple English, with minimal text and added visual elements. Stories from other women with endometriosis were also recommended, as were interactive formats that enable women to ask questions. While the women primarily preferred written information, they also welcomed formats such as webinars or workshops. This study highlights a need for improved information for CALD women with endometriosis. Information resources should be designed to meet women's needs in both content and delivery.