Journeys Through Genomics: Co-Producing Visual Resources to Communicate Patient Experiences.

Area of Science:

• Genomic Medicine
• Patient Experience Research
• Health Communication

Background:

• Genomic medicine is increasingly integrated into UK healthcare.
• Current depictions often emphasize technology over patient impact.
• Understanding patient and family experiences is crucial.

Purpose of the Study:

• To co-produce visual resources illustrating patient and family journeys in genomic medicine.
• To provide a situated understanding of genomic testing challenges.
• To enhance comprehension for future patients, families, and healthcare professionals.

Main Methods:

• Qualitative longitudinal research with patients and families.
• Co-production of illustrations with research participants and an artist.
• Embedding visual resources within research on patient experiences.

Main Results:

• Developed a series of illustrations depicting patient and family experiences with genomic testing.
• Visualized the complex journeys and broader life impacts of genomic medicine.
• Created resources that situate genomic testing within patients' lives.

Conclusions:

• Co-produced illustrations offer a dynamic understanding of genomic medicine's challenges.
• Visual resources can effectively communicate complex patient experiences.
• These tools can improve understanding and support for individuals navigating genomic healthcare.