Patient experiences of colon capsule endoscopy: a qualitative study

Area of Science:

• Gastroenterology
• Medical Technology Assessment
• Patient Experience Research

Background:

• Colon capsule endoscopy (CCE) was implemented by NHS England to address colorectal diagnostic backlogs during the COVID-19 pandemic.
• Limited understanding existed regarding patient experiences with CCE.

Purpose of the Study:

• To explore patient and clinician experiences with CCE during the NHS England pilot.
• To inform the development of a future patient-centered CCE service.

Main Methods:

• A qualitative study involving focus groups (n=25) and interviews (n=7) with patients.
• Asynchronous focus groups (n=16) were conducted with clinicians for contextual understanding.
• Thematic analysis was applied to the collected qualitative data.

Main Results:

• Most patients found CCE convenient and would undergo it again, though some negative experiences were reported.
• Patient anxieties included swallowing the capsule, device malfunction, and procedural uncertainty.
• Women reported greater discomfort and anxiety than men, highlighting a need for improved procedural information and explanation of further investigations.

Conclusions:

• Colon capsule endoscopy (CCE) can enhance colorectal diagnostic capacity when patients are adequately informed and supported.
• Notable gender differences in CCE experiences necessitate tailored information, particularly addressing concerns reported by women.