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Mind the heart - emotional and behavioural difficulties in Danish children and adolescents with ventricular septal
Julie L Hejl1,2, Sara H Lau-Jensen3,4, Tamsin Ford5
1Department of Child and Adolescent Psychiatry, Aarhus University Hospital, Aarhus, Denmark.
Insights
Children with ventricular septal defects (VSDs) experience more emotional and behavioral issues than peers. Many require mental health support, but few receive it, indicating a critical need for early intervention and increased awareness.
Area of Science:
- Pediatric Cardiology
- Child Psychology
- Public Health
Background:
- Ventricular septal defects (VSDs) are common congenital heart defects (CHDs).
- Limited research exists on emotional and behavioral outcomes in children with VSDs.
- Adults with VSDs face psychiatric and social challenges, necessitating early intervention.
Purpose of the Study:
- To assess emotional and behavioral difficulties in children with VSDs.
- To compare these difficulties with normative data.
- To evaluate mental health support access and unmet needs in this population.
Main Methods:
- Cross-sectional national survey of Danish children (5-17 years) with VSDs (n=704).
- Utilized the Strengths and Difficulties Questionnaire (SDQ) for parent-reported outcomes.
- Compared results with age- and sex-stratified normative data and analyzed mental health support utilization.
Main Results:
- Children with VSDs showed higher parent-reported difficulties across all SDQ scales versus norms.
- Girls reported more hyperactivity, conduct, peer, and prosocial issues; boys reported more emotional challenges.
- Only ~50% of children with probable psychiatric disorders received mental health support, with 65.3% of parents reporting unmet needs.
Conclusions:
- Children with VSDs exhibit significant emotional and behavioral difficulties.
- There are critical gaps in mental health support for these children.
- Increased awareness and targeted interventions are crucial for this vulnerable population.
Background:
While much is known about the risks associated with complex congenital heart defects (CHDs), research on the emotional and behavioural outcomes in children with ventricular septal defects (VSDs), the most common form of CHDs, remains limited. Evidence of increased psychiatric morbidity and social challenges in adults with VSDs underscores the importance of addressing emotional and behavioural difficulties earlier in life.
Methods:
We conducted a cross-sectional national survey of Danish children aged 5-17 years (born between 2007 and 2019) with VSDs (n = 704, 248 surgically treated), using the Strengths and Difficulties Questionnaire (SDQ) to compare parent-reported emotional and behavioural difficulties with normative data stratified by age and sex. We examined whether children with probable psychiatric disorders (per SDQ algorithms) had received mental health support and whether parents reported unmet support needs.
Results:
Parent-reported difficulties were higher across all SDQ scales compared to normative data. When stratified by sex, girls especially exhibited more hyperactivity/inattention, conduct, peer, and prosocial difficulties, while boys showed more emotional challenges. Only approximately half of children with a probable psychiatric disorder had received mental health support, and 65.3% of their parents reported unmet needs.
Conclusion:
Children with VSDs exhibited significantly more emotional and behavioural difficulties compared to the general population, highlighting critical gaps in mental health support and the need for greater awareness and targeted interventions.
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