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Exploring the Impact of Financial Toxicity in COPD: A Qualitative Study
Sonal G Mallya1, Kaila Holloway2, Cyd K Eaton3
1Division of Pulmonary and Critical Care Medicine, Johns Hopkins Medicine, Baltimore, Maryland, United States.
Financial toxicity, the burden of medical costs, is common in chronic obstructive pulmonary disease (COPD). It negatively impacts self-management and well-being, requiring further research and interventions.
Area of Science:
- Pulmonary Medicine
- Health Economics
- Patient-Reported Outcomes
Background:
- Chronic Obstructive Pulmonary Disease (COPD) incurs significant direct and indirect medical costs.
- Financial toxicity, encompassing the burden and distress from medical costs, is understudied in COPD patients.
- Understanding patient experiences is crucial for addressing unique challenges in this population.
Purpose of the Study:
- To investigate the prevalence and impact of financial toxicity in individuals diagnosed with COPD.
- To explore the lived experiences of financial toxicity among COPD patients.
Main Methods:
- Conducted semi-structured interviews with 30 individuals diagnosed with COPD.
- Utilized inductive coding and thematic analysis for transcript analysis by two independent coders.
Main Results:
- Key themes identified include sources of financial burden, adjustments in disease management (e.g., medication nonadherence), financial planning changes, emotional distress, and healthcare communication.
- Participants reported significant material burdens, treatment compromises, and disruptions to financial stability.
- Demographics: 56% female, 43% non-Hispanic White, 43% non-Hispanic Black, mean age 69.5, 70% with public insurance only.
Conclusions:
- This study is the first to describe financial toxicity in COPD, revealing it to be a common issue.
- Financial toxicity in COPD can negatively affect self-management, financial stability, and psychological well-being.
- Further research is needed to assess its impact on patient-reported outcomes and to develop effective interventions.
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