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Establishing and Maintaining Congenital Upper Limb Difference Registries: Insights From Global Experiences

Adam Mosa1, Sarah Romans1, Charles A Goldfarb1

  • 1Department of Orthopaedic Surgery, Washington University School of Medicine, St Louis, MO.

The Journal of Hand Surgery
|April 1, 2026
PubMed
Summary

Establishing international congenital hand registries offers valuable data for research but faces logistical and ethical challenges. Collaboration is key for optimizing existing and future congenital upper limb difference registries.

Keywords:
Congenital upper limb differencehand surgeryinternational surgeryregistry development

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