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Family Experiences in a Pediatric Clinical Brain-Computer Interface Program: A Qualitative Study.

Susannah Van Damme1, Leslie Mumford2, Amy Thompson3

  • 1Susannah Van Damme, MSc(OT), OT Reg(Ont), is Team Lead and Occupational Therapist, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada; svandamme@hollandbloorview.ca.

The American Journal of Occupational Therapy : Official Publication of the American Occupational Therapy Association
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Summary
This summary is machine-generated.

Caregiver perspectives reveal brain-computer interface (BCI) use offers transformative play experiences for children with disabilities. Findings guide BCI program development and highlight the need for improved comfort and personalization for enhanced participation.

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Area of Science:

  • Neuroscience
  • Rehabilitation Medicine
  • Assistive Technology

Background:

  • Brain-computer interfaces (BCIs) are emerging technologies to enhance occupational participation for children with disabilities.
  • Limited research exists on the lived experiences of pediatric BCI users and their families.

Purpose of the Study:

  • To explore the experiences and future expectations of pediatric BCI use from the viewpoint of caregivers.
  • To gather insights for improving BCI applications in pediatric rehabilitation and recreational settings.

Main Methods:

  • A qualitative, descriptive study employing purposeful sampling and inductive thematic analysis.
  • Data collected through in-depth, semistructured interviews conducted virtually.
  • Fifteen parents of children (ages 6-18) with disabilities participating in a recreational BCI program were interviewed.

Main Results:

  • Three central themes emerged: transformative experiences, personalization for success, and future hopes.
  • Caregivers reported BCIs empowered their children and shifted perceptions.
  • Challenges included headset discomfort and a desire for more engaging programming.

Conclusions:

  • Documenting family experiences can inform the development of BCI use in clinical and recreational programs.
  • Occupational therapy practitioners can leverage BCIs to foster participation and empowerment in children with disabilities.
  • Addressing comfort and personalization is crucial for optimizing BCI effectiveness.