Improving multidisciplinary tailored care models for bleeding disorders

Area of Science:

• Hematology
• Patient Care Models
• Public Health

Background:

• Bleeding disorder care has advanced, but delivery systems lag, causing fragmented care and delayed diagnoses for many phenotypes.
• While multidisciplinary care improved hemophilia outcomes, diverse bleeding disorders require evolving strategies across the lifespan.
• Current care models often fail to address the complex needs of individuals with inherited and acquired bleeding disorders.

Purpose of the Study:

• To explore adaptations of multidisciplinary care for diverse bleeding disorder phenotypes across life stages.
• To identify emerging tailored care models and structural factors affecting access, continuity, and effectiveness.
• To provide insights into optimizing bleeding disorder care delivery.

Main Methods:

• A targeted literature search was conducted up to February 1, 2026.
• Included were peer-reviewed studies, registry analyses, consensus guidance, and quality improvement reports.
• A narrative review synthesized the identified evidence.

Main Results:

• Flexible, tailored multidisciplinary models are superior to uniform approaches for bleeding disorder care.
• Key elements for progress include redesigned care delivery, patient-centered outcomes, and prioritizing equity and scalability.
• Emerging models focus on integrated, hybrid systems for improved diagnosis and management.

Conclusions:

• The future of bleeding disorder care necessitates adaptable, patient-centered multidisciplinary models.
• Integrating care delivery systems will enhance early diagnosis, sustained engagement, and long-term safety.
• Prioritizing equity and scalability is crucial for advancing care for all bleeding disorder patients.