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A Multimodal Imaging- and Stimulation-based Method of Evaluating Connectivity-related Brain Excitability in Patients with Epilepsy
Published on: November 13, 2016
Stigma as social comorbidity in epilepsy
Andrea Tomasini1, Enrico M Salamone2, Liliana G Grammaldo2
1Associazione Italiana Epilessia (Italian Epilepsy Association), Community Council of International Bureau for Epilepsy, Rome, Italy.
Stigma significantly impacts people with epilepsy (PWE), acting as a social comorbidity. Effective interventions require integrated strategies beyond medical treatment for social recovery.
Area of Science:
- Neurology
- Social Sciences
- Public Health
Background:
- Epilepsy is a widely studied neurological disorder with a substantial social burden.
- Stigma negatively affects quality of life, social participation, and long-term outcomes for people with epilepsy.
- Stigma is a multidimensional issue, encompassing internalized, enacted, and intersectional forms.
Purpose of the Study:
- To propose conceptualizing epilepsy-related stigma as a "social comorbidity".
- To highlight the need for interventions beyond conventional biomedical treatment.
- To reframe epilepsy care and research by emphasizing social and relational consequences.
Main Methods:
- Literature review and conceptual analysis.
- Synthesis of empirical evidence on epilepsy-related stigma.
- Development of a novel conceptual framework.
Main Results:
- Stigma is a pervasive and significant social determinant of health for people with epilepsy.
- Seizure control alone does not eliminate the social and psychological consequences of stigma.
- Epilepsy-related stigma exacerbates disability and constrains life opportunities.
Conclusions:
- Epilepsy-related stigma should be recognized as a "social comorbidity" requiring targeted interventions.
- Integrated strategies including psychosocial support, community engagement, policy reform, and public education are essential.
- Addressing stigma is crucial for genuine social recovery and inclusion for people with epilepsy.
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