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Published on: February 16, 2011
Traumatic brain injury-related stigma among intimate partner violence survivors
Sofia Fauza1, Margarita Velasco1, Eve Valera2,3
1Deparment of Neurology, Massachusetts General Hospital, Boston, Massachusetts, USA.
Objective:
Traumatic brain injury (TBI) is common among survivors of intimate partner violence (IPV), yet little is known about TBI-related stigma in this population. This qualitative study explores how such stigma affects IPV survivors, building on broader research showing its impact on recovery.
Methods:
We conducted individual interviews with IPV survivors with TBI. We analyzed the data using hybrid inductive-deductive thematic analysis.
Results:
We interviewed 20 women (mean age = 44 years, SD: 8.7, range 31-60), including 14 English speakers and 6 Spanish speakers. The largest subgroup (n = 7, 35%) had sustained four TBI's. We identified seven themes spanning three levels: A) Societal, B) Interpersonal, and C) Intrapersonal. At the societal level, the themes were: 1) Stigma across sectors, not limited to healthcare, and 2) Overlapping stigmas with mental health challenges. At the interpersonal level: 3) Interpersonal conflict due to negative attitudes and behaviors, and 4) Lack of understanding about TBI and symptoms. At the intrapersonal level: 5) TBI-related symptoms contributing to shame and self-discrepancy, and 6) Challenges with acceptance of TBI. The final theme cut across all levels: 7) Validation of experience as critical to post-TBI recovery.
Conclusion:
To support IPV survivors with TBI, practitioners must address and reduce stigma.
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