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Factors Influencing User Satisfaction in Accessing Health Data: Cross-Sectional Survey of United Kingdom Adults
Maria Xenou1, Omar Al-Ubaydli2
1UCL Institute of Health Informatics, University College London, 222 Euston Rd, London, London, NW1 2DA, United Kingdom, 44 2035495969.
Background:
While patient health records (PHRs) are becoming ubiquitous, nationwide evidence on the drivers of user satisfaction in the United Kingdom remains scarce.
Objective:
This study aimed to quantify determinants of PHR user satisfaction in a nationally representative sample of United Kingdom adults and to contrast real-world experiences with hypothetical expectations among individuals without PHR exposure.
Methods:
We conducted a cross-sectional online survey in March 2022 using stratified quota sampling (eg, age, sex, ethnicity) through the Prolific platform. Of 1001 respondents, 533 (53%) were female (mean age 41, SD13) years, 468 (47%) reported previous PHR use ("experienced" cohort), and 533 (53%) respondents did not ("hypothetical" cohort). Primary outcomes were five satisfaction items (5-point Likert), overall PHR evaluation (0-100), and stated/anticipated PHR functions. Two-sample t-tests with unequal variances examined between-group differences; multivariate analysis of variance (MANOVA) assessed demographic equivalence. Significance was set at P<.05.
Results:
Respondents with PHR experience rated their record easy-to-use in 79% (370/468) of cases versus an anticipated 93% (498/533) among nonusers (P<.001). Experienced users rated appointment-scheduling time-saving at 68% (319/468) compared with 72% (387/533) of nonusers (P=.17). Mean overall evaluation scores were 71.0 (SD 19.5) versus 74.2 (SD 18.6) (t₉₉₇=2.25, P=.02). MANOVA confirmed demographic balance (Wilks Λ=.99, F₇,₉₉₃=1.48, P=.18). Preferred functions across cohorts were viewing personal health information (experience 81%, hypothetical 90%) and lab results (50% vs 76%). Users lacking experience consistently over-estimated future use of carer-related functions (eg, children's data: 36% vs 12%, P<.001).
Conclusions:
Adults in the United Kingdom value PHRs primarily for personal data access and scheduling convenience. Nonusers displayed optimistic expectations about carer-related features and breadth of functionality, indicating an information gap. Enhancing transparency about current capabilities and expanding features that facilitate caregiving could increase satisfaction and adoption.
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