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Implementation of Paediatric Deep Brain Stimulation: Experience from an Australian Tertiary Centre
Jamie M Barnacoat1,2, Wafa Bani Uraba3, Dianah Hadi4
1Kids Neuroscience Centre, Sydney Children's Hospital Network, Westmead, NSW, Australia.
Journal of Child Neurology
|April 7, 2026
Summary
This study introduces an interdisciplinary team approach for pediatric deep brain stimulation (DBS) decision-making. The framework improves outcomes for children with movement disorders, emphasizing patient and family priorities.
Area of Science:
- Pediatric Neurology
- Neurosurgery
- Movement Disorders
Background:
- Deep brain stimulation (DBS) is an evolving treatment for pediatric movement disorders.
- Decision-making for pediatric DBS requires careful consideration of complex factors.
Purpose of the Study:
- To present an evolving decision-making approach for pediatric deep brain stimulation (DBS) in Australia.
- To describe the impact of an interdisciplinary team (IDT) model on DBS referrals and outcomes.
Main Methods:
- Retrospective review of pediatric patients referred for DBS.
- Comparison of assessment frameworks before and after IDT implementation in 2017.
- Analysis of motor, non-motor, functional outcomes, PROMs, and PREMs.
Main Results:
- Twelve pediatric patients underwent DBS after IDT review, primarily for inherited dystonia.
- Treatment showed effectiveness for inherited dystonia and severe acute motor exacerbations.
- Improved motor symptoms, quality of life, and patient satisfaction were observed.
Conclusions:
- An interdisciplinary framework supports collaborative DBS decision-making in children, incorporating family expectations.
- Multifaceted outcome evaluation, including PROMs and PREMs, is crucial for reflecting patient priorities.
