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Updated: Apr 11, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
Intensive Interaction for children and young people with profound and multiple learning disabilities (INTERACT):
Kerry J Bell1, Jill Bradshaw2, Judy Clegg3
1York Trials Unit, Department of Health Sciences, University of York, York, UK. kerry.bell@york.ac.uk.
This study investigates Intensive Interaction (II) for children with profound and multiple learning disabilities (PMLD). Results will inform support strategies for PMLD individuals in educational and home settings.
Area of Science:
- Speech and Language Therapy
- Special Education
- Developmental Psychology
Background:
- Communication interventions are vital for individuals with profound and multiple learning disabilities (PMLD).
- The clinical and cost-effectiveness of many communication interventions, including Intensive Interaction (II), remain unclear.
- Inconsistent training and application of II may affect its quality and impact.
Purpose of the Study:
- To evaluate the effectiveness of Intensive Interaction (II) in improving communication skills of children and young people with PMLD.
- To provide structured training in II to educational staff and parents/carers.
- To explore coordinated, joint activities for II delivery in educational settings and at home.
Main Methods:
- A multi-site pragmatic cluster randomised controlled trial comparing II plus usual care with usual care alone.
- Recruitment of 330 participants (aged 3-25 years) with PMLD from 66 educational settings in Great Britain.
- Data collection at baseline, 32 weeks, and 52 weeks, with the primary outcome (communication skills) measured by the Communication Complexity Scale (CCS) at 32 weeks.
Main Results:
- The primary outcome is communication skills, measured by the Communication Complexity Scale (CCS) at 32 weeks post-randomisation.
- Setting staff will video record interactions, coded by blinded research team members.
- Health and educational outcomes, including communication, behaviour, wellbeing, and quality of life, will be assessed.
Conclusions:
- This study addresses a widely used but under-researched intervention for PMLD.
- Findings will guide support strategies for children and young people with PMLD in educational and home environments.
- The research aims to improve the quality and consistency of II implementation.
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