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Evolution of a Client-Level Dataset: 20 Years of National Child Traumatic Stress Network Data Collection
C A Purbeck1, A N Cooke1, L J Liang2
1Duke University Department of Psychiatry and Behavioral Sciences, UCLA/Duke University National Center for Child Traumatic Stress, Durham, North Carolina, USA.
For two decades, the National Child Traumatic Stress Network (NCTSN) has improved clinical quality through data collection initiatives. These efforts enhance care for children experiencing trauma by analyzing data from thousands of participants across numerous sites.
Area of Science:
- Child Psychology
- Trauma-Informed Care
- Clinical Quality Improvement
Background:
- The National Child Traumatic Stress Network (NCTSN) has focused on Clinical Quality Improvement (ClQI) for 20 years.
- NCTSN is a US federally funded initiative enhancing care for children and families exposed to trauma.
Purpose of the Study:
- To analyze the impact of NCTSN's data collection efforts on ClQI.
- To identify factors influencing the advancement of child traumatic stress initiatives.
Main Methods:
- Examined three initiatives: Core Data Set (CDS), Clinical Improvement through Measurement Initiative (CIMI) Measurement Based Care (MBC), and CIMI Data Sharing (CIMI-DS).
- Collected and analyzed client-level data from nearly 26,500 participants across 91 sites.
- Utilized the Consolidated Framework for Implementation Research (CFIR) to assess external influences.
Main Results:
- External forces like funding, policy, and societal shifts significantly impact ClQI.
- Collaboration, technology, and adaptable data collection are crucial for advancing ClQI and child traumatic stress care.
- Decades of data collection have informed best practices.
Conclusions:
- Lessons learned and recommendations for creating large, query-able datasets across networks.
- Insights provided to support the integration of data into clinical practice.
- Emphasized the importance of sustained data collection for ongoing quality improvement.
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