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Blueprint for building a patient-centered hereditary cancer program based on stakeholder perspectives
Tamar Nicole Soussana1, Michelle Primiano1, Muhammad Danyal Ahsan1
1Weill Cornell Medicine, New York, NY 10065, United States.
Gynecologic Oncology Reports
|April 10, 2026
Summary
Establishing a cancer genetics program requires careful planning of provider roles, program structure, and education. Key recommendations focus on versatile genetic counselor roles, streamlined workflows, and integrated educational resources for optimal service delivery.
Area of Science:
- Oncology
- Genetics
- Healthcare Management
Background:
- Increasing demand for clinical cancer genetics services necessitates strategic planning for healthcare systems.
- Establishing a new cancer genetics program requires understanding stakeholder perspectives on optimal care delivery.
Purpose of the Study:
- To assess key stakeholders' recommendations for optimal care delivery models and service offerings for a new cancer genetics program.
- To gather insights from diverse stakeholders based on their prior experiences with cancer genetics services.
Main Methods:
- Virtual key informant interviews were conducted with 34 stakeholders.
- Stakeholders included clinical cancer genetics providers, genetic counselors, referring providers, and administrative staff from four institutions.
Main Results:
- Key considerations for program development fall into three areas: provider roles, program structure, and education.
- Stakeholders recommended versatile roles for genetic counselors, administrative support from genetic counselor assistants, and specific responsibilities for genetics providers.
- Optimal program structure includes initial assessment, follow-up care, streamlined cascade testing, sample collection, and appointment workflows, ideally within a standalone program.
- Educational opportunities for patients and providers were identified as essential.
Conclusions:
- The recommendations provide a framework for healthcare systems and practices to establish effective cancer genetics services.
- Implementing these insights can enhance the efficiency and continuity of cancer genetics care delivery.
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