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Medication Barriers and Challenges Experienced/Perceived by Caregivers in Pediatric Medication Management: A Scoping
Anmol Toor1, Tapanga Brooks1, Andrea W Tang1
1College of Pharmacy and Nutrition, University of Saskatchewan, Saskatoon, SK, Canada.
Insights
Non-professional caregivers face significant challenges managing pediatric medications. Addressing drug factors and caregiver knowledge gaps is crucial for improving medication administration success in children with chronic conditions.
Area of Science:
- Pediatric Pharmacology
- Caregiver Support
- Chronic Disease Management
Background:
- Managing medications for pediatric patients with chronic diseases presents unique challenges for non-professional caregivers.
- Understanding these barriers is essential for improving treatment adherence and outcomes.
Purpose of the Study:
- To identify and categorize the challenges and barriers non-professional caregivers (e.g., parents) encounter when managing medications for pediatric patients with chronic conditions in outpatient settings.
Main Methods:
- A scoping review was conducted using Embase and Ovid Medline databases, adhering to Joanna Briggs Institute methodology and PRISMA-SCr guidelines.
- Evidence selection and data extraction were performed independently by two reviewers.
- Thematic analysis was used to group and theme identified medication barriers.
Main Results:
- Eight articles were included, identifying 20 medication barriers categorized into drug factors, drug burden/regimen, access, caregiver, child, healthcare system, and fear/stigma.
- Drug factors constituted 25% of barriers, followed by caregiver factors (20%).
- Key barriers included drug formulation, caregiver knowledge, and forgetfulness.
Conclusions:
- Non-professional caregivers face substantial medication management challenges.
- Future research should prioritize interventions targeting drug formulation, caregiver knowledge, and memory aids to enhance pediatric medication administration success.
Abstract:
The objective of this scoping review was to identify the challenges and barriers non-professional caregivers such as parents, experience/perceive when managing the medications for pediatric patients with chronic disease states in an outpatient setting. Embase and Ovid Medline databases were searched for articles published from inception to May 18, 2024. The search was limited to English language articles. Studies conducted in countries with a developing or transitioning economy, or those based in an institutional setting were excluded. This review was conducted as per the Joanna Briggs Institute Manual for Evidence Synthesis scoping review methodology and adhered to the PRISMA-SCr 2020 Checklist. Evidence selection and data extraction was completed independently by 2 reviewers (AT and TB) and then combined. Medication barriers were identified, grouped and themed using thematic analysis. Eight articles were included in this review. After extraction, 20 medication barriers were identified and themed into the following categories: drug factors, drug burden/regimen, access to medications, caregiver factors, child factors, health care system challenges, and fear and stigma. Drug factor medication barriers were highly endorsed by non-professional caregivers (25% of total barriers), followed by caregiver factors (20% of total barriers). To increase the likelihood of pediatric medication administration success, research focused on improving these barriers should be identified, especially those related to drug formulation and caregiver medication knowledge and forgetfulness.
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