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Optimizing a Transdiagnostic Sleep and Circadian Intervention for Autistic Young Adults: A Qualitative Study Using an

Kristina P Lenker1, Allison G Harvey2, Amanda L Richdale3

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Summary
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Autistic adults experience significant sleep and circadian issues. This study adapted an intervention (TranS-C) based on feedback from autistic individuals, caregivers, and clinicians to improve treatment effectiveness.

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Area of Science:

  • Neurodevelopmental Disorders
  • Sleep Medicine
  • Public Health

Background:

  • Autistic adults report widespread sleep and circadian rhythm disturbances.
  • These issues represent a significant, unmet public health need.
  • Existing sleep interventions are rarely tailored for autistic individuals.

Purpose of the Study:

  • To gather perspectives from autistic adults, caregivers, and clinicians.
  • To inform the adaptation of an evidence-based transdiagnostic sleep intervention for autistic adults.
  • To enhance the feasibility and effectiveness of sleep interventions in this population.

Main Methods:

  • Qualitative study employing semi-structured interviews.
  • Interviewed 20 autistic young adults, 20 caregivers, and 20 clinicians.
  • Guided adaptations of the Transdiagnostic Intervention for Sleep and Circadian Dysfunction (TranS-C).

Main Results:

  • Confirmed the need for transdiagnostic approaches to address multidimensional sleep problems in autistic adults.
  • Identified stakeholder convergence and divergence on themes related to intervention delivery and adherence.
  • Informed specific content adaptations (e.g., memory aids, simplified materials) and delivery enhancements (e.g., telehealth, provider training).

Conclusions:

  • Autism-related sleep and circadian problems are complex, requiring transdiagnostic interventions.
  • Adaptations to intervention content and delivery are crucial for improving adherence and addressing unique autistic needs.
  • Tailored interventions can better support autistic adults across the lifespan.