Redefining holistic care for gynecologic hereditary cancer syndromes through universal social work referrals

Individuals with hereditary cancer syndromes often experience unique psychosocial challenges that may not be fully addressed in routine clinical care. Support with communicating genetic risk to family, coordinating complex medical care, and managing distress may enhance emotional well-being and improve engagement in recommended cancer prevention strategies. Incorporating social work services into gynecologic hereditary cancer care may address these unmet needs and promote a more comprehensive, patient-centered care model.

From April through September 2024, all patients with hereditary cancer syndromes followed at a gynecologic oncology clinic were offered referral to a genetics social worker. For patients who accepted, the social worker documented their primary areas of interest. Uptake of social work services was examined in relation to patient demographics and clinical characteristics.

Among 124 patients offered referrals, 102 (82.3%) accepted. New patients to the gynecologic oncology clinic were significantly more likely to engage with social work services vs. established patients (91.2% vs. 74.6%, p = 0.02). No other variables were associated with interest in social work. Among those who engaged with the social worker, the most frequently requested domains of assistance included mental health resources (36.9%), support groups (35.4%), family testing (32.3%), and care coordination (30.8%).

Integration of social work services into gynecologic hereditary cancer care resulted in high patient engagement. The strongest uptake was observed among new patients, underscoring the importance of providing early access to support. Overall, patients expressed substantial interest in mental health resources, support groups, family testing, and care-coordination assistance, highlighting critical areas for enhanced care delivery.