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Integration of Pediatric Palliative Care in Oncology: A Scoping Review
Stefanie Stober1, Sebastian Hoffmann2, Sabine Metzing1
1Department of Nursing Science, Faculty of Health, Witten/Herdecke University, Witten, Germany.
Insights
Integrating pediatric palliative care (PPC) into inpatient pediatric oncology settings is crucial but faces barriers. Early, family-centered PPC models and improved staff training are needed for better quality of life.
Area of Science:
- Oncology
- Palliative Care
- Health Services Research
Background:
- Pediatric palliative care (PPC) improves quality of life for children with cancer and their families.
- Systematic integration of PPC into pediatric oncology, especially inpatient settings, is limited.
- Evidence on PPC design, implementation, and evaluation in pediatric oncology inpatient settings is needed.
Purpose of the Study:
- To map and synthesize international evidence on PPC in pediatric oncology inpatient settings.
- To identify how PPC is designed, implemented, and evaluated.
- To determine barriers and facilitators to PPC clinical integration.
Main Methods:
- Comprehensive literature search of MEDLINE, CINAHL, PsycINFO, and Web of Science (2014-2025).
- Followed PRISMA-ScR reporting standards.
- Data were charted and narratively synthesized from 34 studies across 18 countries.
Main Results:
- Evidence showed delayed PPC initiation, varied service models, and limited outcome evaluation.
- Common barriers included lack of standardized models, structural constraints, inadequate training, and communication issues.
- Qualitative methods were most common (n=12), followed by chart reviews (n=7) and surveys (n=4).
Conclusions:
- A global need exists to integrate early, family-centered PPC into pediatric oncology inpatient care.
- Health systems must prioritize staff training and adaptable interdisciplinary models.
- Structured evaluation strategies are essential to enhance PPC quality and consistency.
Objective:
Pediatric palliative care (PPC) enhances quality of life for children with cancer and their families, yet its systematic integration into oncology practice remains limited, particularly in hospital-based care. This scoping review aimed to map and synthesize international evidence on how PPC is designed, implemented, and evaluated in pediatric oncology inpatient settings, and to identify key barriers and facilitators to its clinical integration.
Methods:
We conducted a comprehensive search of MEDLINE, CINAHL, PsycINFO, and Web of Science (2014-2025). Reporting followed PRISMA-ScR standards. Data were charted and narratively synthesized.
Results:
Thirty-four studies from 18 countries met inclusion criteria. Most used qualitative methods (n = 12), followed by retrospective chart reviews (n = 7), surveys (n = 4), and reviews or guidelines (n = 11). Evidence revealed delayed initiation of PPC, heterogeneous service models, and limited outcome evaluation. Seven recurrent barriers emerged: absence of standardized models, structural constraints, inadequate staff training, suboptimal communication and family engagement, emotional and cultural barriers, psychosocial strain, and insufficient evaluation frameworks.
Conclusions:
These findings highlight a global need to integrate early, family-centered PPC within pediatric oncology inpatient care. Health systems should prioritize staff training, establish adaptable interdisciplinary models, and implement structured evaluation strategies to strengthen the quality and consistency of PPC delivery.
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