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Published on: January 11, 2020
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Cancer screening learning for adults with intellectual disability
Satgé Daniel1,2, Neumann-Michel Elodie3, Otandault Amaëlle3
1, ONCODEFI Parc Euromédecine, Montpellier, France. daniel.satge@oncodefi.org.
Summary
Interventions significantly improved cancer screening knowledge for adults with intellectual disability (ID). While initial screening intention increased, long-term participation requires further study, highlighting the value of co-constructed programs.
Area of Science:
- Health disparities in cancer screening
- Intellectual disability research
- Public health interventions
Background:
- Individuals with intellectual disability (ID) experience similar cancer rates but often present with later-stage diagnoses.
- Adults with ID demonstrate reduced engagement in organized cancer screenings for breast, cervical, and colorectal cancers.
- Targeted interventions are needed to address knowledge gaps and promote screening participation in this population.
Purpose of the Study:
- To evaluate the effectiveness of a co-constructed intervention aimed at enhancing cancer screening knowledge and intention to participate among individuals with ID.
- To assess the impact of direct educational interventions on cancer screening awareness and intent within the ID community.
- To explore the role of co-design and collaboration with people with ID in intervention development and delivery.
Main Methods:
- An open-label cluster randomized controlled trial was conducted, co-designed with individuals with ID.
- Participants received interventions focused on cancer screening or oral hygiene, utilizing diverse methods like presentations, games, and films.
- Knowledge and screening intention were assessed via questionnaires at baseline, immediately post-intervention, and at three months and one year.
Main Results:
- Participants in the cancer screening intervention group showed significant improvements in knowledge at all follow-up points (15 min, 3 months, 1 year).
- Intention to participate in screenings significantly increased immediately post-intervention but showed non-significant changes at three months and a trend at one year.
- The co-construction process, involving a steering group and active participation of individuals with ID in developing materials and content, enhanced study efficacy.
Conclusions:
- Direct interventions co-constructed with people with intellectual disability are effective in improving cancer screening knowledge.
- While immediate intention to screen increases, sustained participation requires ongoing strategies and support.
- The meaningful involvement of individuals with ID in research design and implementation is crucial for study success and relevance.
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