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A Data-Centric Approach for Health Care and Research in a Health Knowledge Management Platform: Implementation and

Björn Schreiweis1,2, Benjamin Kinast1,2, Hannes Ulrich1,2

  • 1Institute for Medical Informatics and Artificial Intelligence, Kiel University and University Hospital Schleswig-Holstein, Arnold-Heller-Straße 3, Kiel, 24105, Germany, 49 0431500 ext 31601.

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PubMed
Summary

This study introduces a health knowledge management platform to integrate siloed health data, improving knowledge transfer between patient care and research. The platform successfully integrates diverse data formats and supports key use cases in cardiology and radiology.

Keywords:
clinical data repositorydata integrationinteroperabilityknowledge managementrequirements engineeringsecondary use

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Area of Science:

  • Health Informatics
  • Knowledge Management
  • Data Integration

Background:

  • Healthcare IT increasingly relies on data, but data is often siloed and unstructured across systems.
  • A health knowledge management platform is introduced to integrate, harmonize, and enable reuse of healthcare and medical research data.
  • The platform aims to bridge the gap between research and patient care within healthcare institutions.

Purpose of the Study:

  • To design, implement, and evaluate a knowledge management platform.
  • Integrate health care and biomedical research data to support use cases in both domains.
  • Enhance knowledge management and data accessibility in healthcare.

Main Methods:

  • Developed a health knowledge management platform based on stakeholder focus groups and identified requirements.
  • Designed an architectural concept based on functional requirements.
  • Evaluated the platform using the Framework for Evaluation in Design Science Research and ISO/IEC 25010 standard, focusing on cardiology and radiology scenarios.

Main Results:

  • The platform integrates diverse data formats (HL7v2, CSV, DICOM) including over 46 million ADT messages and 38 million imaging studies.
  • It manages data for approximately 1.5 million patients, featuring a 5-layer architecture with a clinical data repository, Master Patient Index, and Consent Management.
  • Evaluation against 39 requirements showed the platform's capability in real-world cardiology and radiology scenarios, covering most identified needs.

Conclusions:

  • The health knowledge management platform at University Hospital Schleswig-Holstein demonstrates capability in integrating diverse health data.
  • The platform's architecture and standardized data enhance data quality and facilitate knowledge access, potentially improving knowledge transfer between patient care and research.
  • Further development and quantitative measures are recommended to enhance applicability in dynamic healthcare environments.