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Exploring Patient Empowerment and Health System Outcomes Associated With MyHealthNB, a Provincial Personal Health

Paula Voorheis1,2,3, Stephan U Dombrowski4, Frances Bruno2,3

  • 1School of Pharmacy, University of Wisconsin-Madison, Madison, WI, United States.

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Personal health record systems (PHRs) like MyHealthNB empower patients by improving health information access and confidence. These systems promote active health management, especially with primary care support and digital literacy.

Keywords:
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Area of Science:

  • Digital Health
  • Health Informatics
  • Patient Empowerment

Background:

  • Personal Health Record systems (PHRs) aim to empower patients with access to health information.
  • MyHealthNB is a provincial PHR in Canada offering access to lab results, medications, and more.
  • Understanding the impact of PHRs on patient empowerment is crucial as they expand.

Purpose of the Study:

  • To examine the empowerment-related impacts of PHRs using MyHealthNB as a case study.
  • To investigate perceived impacts across enablement, empowerment, involvement, engagement, and cost-related outcomes.
  • To identify prevalent impacts, their interrelationships, and predictors of variation.

Main Methods:

  • An exploratory sequential mixed methods design was employed.
  • Phase 1: Qualitative interviews to explore perceived impacts of MyHealthNB.
  • Phase 2: Cross-sectional survey to measure self-reported impacts and analyze predictors.

Main Results:

  • 32 interviews and 885 survey responses analyzed.
  • MyHealthNB use showed a progression from enablement to empowerment, involvement, and engagement.
  • Significant positive impacts were found across 21 measured outcomes; empowerment linked enablement to involvement/engagement.

Conclusions:

  • PHRs show potential for improving patient empowerment, behavior change, and health system benefits.
  • Benefits are maximized with primary care access, provider support, and digital confidence.
  • Investment in digital literacy and primary care integration is recommended for optimal PHR benefits.