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Life Experiences of Individuals With Fecal Incontinence: A Thematic Meta-Synthesis Study
İlknur Özkan1, Seçil Taylan2, Cansu Polat Dünya3
1Internal Medicine Nursing Department, Kumluca Faculty of Health Sciences, Akdeniz University, Kumluca-Antalya/Turkey.
Advances in Skin & Wound Care
|May 1, 2026
Summary
Fecal incontinence profoundly impacts mental, sexual, and social well-being, extending beyond physical symptoms. Addressing social stigma and improving healthcare awareness are crucial for individuals experiencing fecal incontinence.
Area of Science:
- Psychosocial impact of chronic conditions
- Qualitative research synthesis
- Patient lived experiences
Background:
- Fecal incontinence (FI) significantly affects individuals' quality of life.
- Understanding the lived experiences of FI is crucial for effective management.
- Existing research often focuses on physical aspects, neglecting psychosocial dimensions.
Purpose of the Study:
- To systematically synthesize qualitative research on the life experiences of individuals with fecal incontinence (FI).
- To interpret the multifaceted impact of FI on patients' lives.
- To identify barriers and coping strategies related to FI management.
Main Methods:
- A comprehensive meta-synthesis of qualitative studies published between 2010 and 2023.
- Literature search across major databases (CINAHL, MEDLINE, PubMed, Web of Science, OpenAIRE, OVID) following PRISMA guidelines.
- Thematic synthesis of data from 16 included studies focusing on experiences, perceptions, and coping.
Main Results:
- Five key themes emerged: the meaning of FI, perceived management barriers, life impact, coping strategies, and expectations.
- FI is experienced as more than a physical ailment, deeply affecting mental health, social interactions, and sexual life.
- Social stigma, taboos, and low healthcare provider awareness impede symptom disclosure and help-seeking.
Conclusions:
- Fecal incontinence (FI) has profound psychosocial consequences, impacting mental, sexual, and social domains.
- Stigma and lack of awareness create significant barriers to care for individuals with FI.
- Educational interventions and awareness campaigns are vital to reduce stigma and address the psychosocial aspects of FI.
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