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Needs Assessment to Inform a Life Course-Based Support Programme for Adolescents with Perinatally Acquired HIV in
Rirhandzu Austice Mabasa1, Cairo Bruce Ntimana2, Tebogo Maria Mothiba3
1Department of Public Health, University of Limpopo, Sovenga St., Polokwane 0727, South Africa.
Summary
Adolescents living with perinatally acquired HIV (APHIV) face challenges in disclosure and treatment literacy. Developing adolescent-centred support programs is crucial for their well-being and adherence.
Area of Science:
- Pediatrics
- Public Health
- Psychology
Background:
- Adolescents living with perinatally acquired HIV (APHIV) require tailored support.
- Understanding their unique challenges is essential for effective interventions.
Purpose of the Study:
- To explore the challenges and support needs of APHIV.
- To generate evidence for developing adolescent-centred support programs.
Main Methods:
- Mixed-methods sequential exploratory design.
- Qualitative phase: semi-structured interviews with 21 APHIV.
- Quantitative phase: survey administered to 186 APHIV.
Main Results:
- Life trajectories influenced by diagnosis and disclosure circumstances.
- Identified gaps in treatment literacy and disclosure processes.
- Emotional distress and variable family/healthcare support noted.
Conclusions:
- Findings highlight informational, psychosocial, and support needs of APHIV.
- Recommends context-specific, adolescent-centred programs.
- Emphasizes integrating psychosocial support, family engagement, and improved healthcare communication.
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