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Investigating the Multifaceted Needs and Challenges of Family Caregivers of Individuals with Spinal Cord Injury: A
Somayyeh Mohammadi1,2,3, Asia Cai1,2, Heather Cathcart1,2
1Department of Occupational Science and Occupational Therapy, University of British Columbia, Vancouver, Canada.
Abstract:
This qualitative study explored the challenges faced by family caregivers of individuals with spinal cord injury (fcSCI) and the contributing factors to these challenges. Thirteen field experts, including fcSCI and clinical and professional experts, participated. Ten vignettes showcasing various issues faced by fcSCI were used to facilitate the discussion. Thematic analyses of semi-structured interviews identified two themes: (i) decline in wellbeing: "It just weighs on you," which explained the psychological, social, and physical challenges faced by fcSCI, and (ii) lacking caregiver preparedness:"There's just so many things to know," which describes the diverse responsibilities that fcSCI take. Findings emphasized the negative consequences of providing long-term care and the importance of improving caregiver readiness. Facilitating access to educational resources is an essential step in supporting family caregivers.
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Physicians
The physician's primary responsibility is to diagnose illness and direct the medical or surgical treatment of the condition. The authority to admit patients to a healthcare agency or institution and practice care within that setting is granted to physicians by the healthcare agency or institution itself.
