Needs of family caregivers of older adults with post-stroke sequelae

Stroke is the leading cause of disability, resulting in mobility deficits, cognitive and functional impairments that lead to dependence. As a result, caregivers experience stress, anxiety, and uncertainty during the transition from hospital to home due to inadequate preparation for taking on the role.

To describe the needs of family caregivers of older adults with post-stroke sequelae.

A qualitative, phenomenological study was conducted using in-depth, open-ended interviews, audio-recorded and transcribed, accompanied by field notes. A convenience sample of six participants was selected. An interpretative phenomenological analysis was conducted in light of Edmund Husserl's theoretical and referential framework.

Six participants, daughters of older adults with post-stroke sequelae, took part in the study. Most were married, had a secondary education, were homemakers, and reported low economic income. Three core themes of meaning emerged from their caregiving experiences: Awareness of reality, perceived needs, and caregiving coping strategies. They expressed their feelings and interpretations in detail, sharing from their lived experiences the challenges and care required in response to their family member's health deterioration.

Caregivers face emotional and knowledge-related challenges when caring for older adults after a stroke. According to various studies, professional training and spiritual and family support are key strategies for reducing caregiver burden and improving the quality of care.

The identified needs include caregiving support, highlighting preparation for home care, and access to psychological assistance.