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A systematic review of the social functioning of youth with JIA: Barriers, stigma, and resources
Kristina Jelinkova1, Kaveena Natasha2, Marinka Twilt3
1Werklund School of Education, University of Calgary, Calgary, Canada.
Objective:
To examine the social experiences of youth with Juvenile idiopathic arthritis (JIA).
Methods:
This systematic review synthesizes findings from 18 qualitative studies (2014-2024) based on a search from four databases (Scopus, PubMed, Web of Science, and PsycINFO). The studies were assessed for quality using the Critical Appraisal Skills Programme Qualitative Checklist (CASP, 2024).
Results:
Six key themes emerged: (1) Physical Barriers to Social Interaction, (2) Lack of Understanding from Others, (3) Enacted Stigma, (4) Anticipated Stigma, (5) Internalized Stigma, and (6) Resources.
Conclusions:
The review findings support increasing public awareness, fostering peer support, enhancing self-advocacy skills, and implementing stigma-reduction strategies to better support the social functioning of youth with JIA. Future research should explore long-term effects of stigma and evaluate targeted interventions to improve social experiences and quality of life for this population.
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