Examining the Lived Experiences of Older Autistic Adults: A Synthesis Review of Qualitative Literature

This scoping review includes the qualitative literature published from 2013 to 2024 exploring health, healthcare and quality of life among older Autistic adults. Aims were to identify evidence of later life experiences and outcomes for this population.

The review was based on Joanna Briggs Institute (JBI) scoping review methodology, with keywords searched within five relevant databases. Studies comprised peer reviewed articles with qualitative or mixed method designs addressing the quality of life, health or healthcare of Autistic adults in mid and later years (50 years and older). Participants in the reviewed studies included Autistic individuals, including those with or without intellectual disability, and/or individuals who support this population (e.g., personal supporters, caregivers, healthcare or service providers).

A total of 12 papers were found that had qualitative data and met inclusion criteria. These studies cumulatively identified themes related to (i) aging with autism, with subthemes of sense of self and identity, connection, deriving enjoyment or meaning, and navigating health and healthcare; and (ii) service gaps, with subthemes of service issues, factors that mediate the effectiveness of supports, and professional knowledge gaps.

Study authors advocate for increased research on aging and autism, improved services, and enhanced training and capacity-building for professionals in this field.