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Paediatric patient experience during hospitalisation stays: Developing paediatric PREMS questionnaires through a

Sabina De Rosis1, Veronica Spataro2, Jan A Hazelzet3

  • 1Sant'Anna School of Advanced Studies, Pisa, Italy; University "Mediterranea" of Reggio Calabria, Italy.

Acta Psychologica
|May 10, 2026
PubMed

Insights

This study developed tools to gather feedback from hospitalized children and adolescents. These Paediatric Patient Reported Experience Measures (Paediatric PREMs) help improve healthcare management by including young patients' perspectives.

Area of Science:

  • Pediatric Healthcare Research
  • Patient Experience Measurement
  • Health Services Management

Background:

  • Children and adolescents often face healthcare vulnerabilities, with limited systematic integration of their perspectives into management.
  • Patient-centered care is a key principle, yet a gap exists in capturing pediatric patient experiences effectively.
  • The VoiCES European project aimed to address this gap by focusing on hospitalized children and adolescents.

Purpose of the Study:

  • To explore the construct of pediatric patient experience.
  • To participatorily develop standardized tools for collecting feedback from children and adolescents on their hospital experiences.
  • To create age-appropriate, multilingual questionnaires for Paediatric Patient Reported Experience Measures (Paediatric PREMs).

Main Methods:

  • A collaborative, consensus-building process involving children, adolescents, families, experts, and healthcare professionals across Europe.
  • Combined Delphi study methodology with in-depth interviews of pediatric patients in four European children's hospitals.
  • Iterative refinement of dimensions, sub-domains, and questionnaire items based on stakeholder input.

Main Results:

  • Developed age-appropriate, multilingual Paediatric Patient Reported Experience Measures (Paediatric PREMs) for hospitalized children (8-14 years) and their caregivers.
  • Included visual elements in questionnaires for children aged 8-14 to enhance comprehension and engagement.
  • Demonstrated the importance of tailoring participation and evaluation tools to different age groups.

Conclusions:

  • The developed Paediatric PREMs are valuable resources for healthcare managers and providers to improve quality and management.
  • Incorporating young patients' perspectives through these tools is crucial for enhancing healthcare services.
  • This work supports the establishment of a European Observatory on pediatric hospital experiences.

Keywords:
Collaborative consensus-building processDelphi studyPaediatric hospitalisationPatient reported experience measures (PREMs)Patient-centered careStakeholder engagement

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