Related Experiment Video
Updated: May 12, 2026
06:16
Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
Paediatric patient experience during hospitalisation stays: Developing paediatric PREMS questionnaires through a
Sabina De Rosis1, Veronica Spataro2, Jan A Hazelzet3
1Sant'Anna School of Advanced Studies, Pisa, Italy; University "Mediterranea" of Reggio Calabria, Italy.
Acta Psychologica
|May 10, 2026
Summary
This study developed tools to gather feedback from hospitalized children and adolescents. These Paediatric Patient Reported Experience Measures (Paediatric PREMs) help improve healthcare management by including young patients' perspectives.
Area of Science:
- Pediatric Healthcare Research
- Patient Experience Measurement
- Health Services Management
Background:
- Children and adolescents often face healthcare vulnerabilities, with limited systematic integration of their perspectives into management.
- Patient-centered care is a key principle, yet a gap exists in capturing pediatric patient experiences effectively.
- The VoiCES European project aimed to address this gap by focusing on hospitalized children and adolescents.
Purpose of the Study:
- To explore the construct of pediatric patient experience.
- To participatorily develop standardized tools for collecting feedback from children and adolescents on their hospital experiences.
- To create age-appropriate, multilingual questionnaires for Paediatric Patient Reported Experience Measures (Paediatric PREMs).
Main Methods:
- A collaborative, consensus-building process involving children, adolescents, families, experts, and healthcare professionals across Europe.
- Combined Delphi study methodology with in-depth interviews of pediatric patients in four European children's hospitals.
- Iterative refinement of dimensions, sub-domains, and questionnaire items based on stakeholder input.
Main Results:
- Developed age-appropriate, multilingual Paediatric Patient Reported Experience Measures (Paediatric PREMs) for hospitalized children (8-14 years) and their caregivers.
- Included visual elements in questionnaires for children aged 8-14 to enhance comprehension and engagement.
- Demonstrated the importance of tailoring participation and evaluation tools to different age groups.
Conclusions:
- The developed Paediatric PREMs are valuable resources for healthcare managers and providers to improve quality and management.
- Incorporating young patients' perspectives through these tools is crucial for enhancing healthcare services.
- This work supports the establishment of a European Observatory on pediatric hospital experiences.
Related Concept Videos
01:23Pharmacokinetics in Pediatric Patients: Overview and Drug Absorption
Understanding the physiological differences in the pediatric population is crucial for effective pharmacotherapy. Neonates, infants, and children exhibit significant variations in gastric pH, gastric emptying time, intestinal transit time, and biliary function. These variations profoundly affect oral drug absorption, necessitating a nuanced approach to pediatric dosing.Neonates present with a unique physiological profile, having a gastric pH greater than 4 and faster and more irregular gastric...
01:26Pharmacokinetics in Pediatric Patients: Drug Excretion
In pediatric medicine, understanding the renal function and drug elimination nuances is crucial for administering safe and effective treatments. Newborns, in particular, display markedly slower renal functions than adults, profoundly affecting how drugs are cleared from their bodies. This slower drug clearance requires clinicians to extend the dosing intervals for many medications to prevent drug accumulation and toxicity while ensuring therapeutic efficacy.One key area where these adjustments...
01:17Pharmacokinetics in Pediatric Patients: Drug Distribution
Drug distribution in the pediatric population exhibits unique challenges and considerations due to the physiological differences between children, particularly neonates and infants, and adults. A crucial aspect of pediatric pharmacology is understanding how these differences impact the pharmacokinetics of various drugs, necessitating age-specific dosing strategies to ensure efficacy and safety.Neonates and infants have a higher total body water content, ~75%–90% of their body weight, compared...